Showing posts with label endurance. Show all posts
Showing posts with label endurance. Show all posts

Scattered thoughts


In the four years he's been with us, there's been a lot on our plate. It's easy to feel guilty about all the moments lost to other things - things more difficult or stressful than this fairly easy little boy who entered our lives with a bang, who fills our home and our days with a little more noise than we've had in the past.


At t-ball, the other little boys come running to tattle - he's always throwing sand, or casting someone out of his "castle" atop the playground, or taking on some much bigger boy for the title of king. I'm not sure where he got all his bluster, and I'm not always sure what to do about it. So when we're at the beach and there are no other little boys around, I let him toss sand until he's content, and I just sit there and we belly laugh together as the handfuls catch the afternoon sun.


His needs come in great big tidal waves that wash over me and throw me off balance - 24 hours of cuddling at a time, regression so severe that I literally throw my hands to the heavens and tell God I don't know what to do next. And in the dark of the night, when I'm confused and I feel malnourished of both sleep and wisdom, I go to the kitchen looking for the prescriptions I forgot to take that evening in my rush to get him to stop crying. I can't find anything I'm looking for except for the leather bound Bible on the counter. About as a far from Christian Science as you can get, my hand falters over the cover. I keep looking for my meds. But another 20 minutes, and I'm still coming up empty, and I stumble back to bed thinking 12 hours can't make that much of a difference, Bible in hand.


I read four Psalms that night, Psalms 74, 75, 76 and 77, four in which I had underlined nothing in my red Bible in which almost every chapter there is something underlined. One line jumped out at me, and I remember falling asleep murmuring that line, a holy prayer from the Word. But I read those four Psalms today, to quote that line to you, and I cannot find it. I don't know what caught my heart in the hours of the long night.


It's a mixed up story, this. A mother's heart all worked up over her children. I have so many fears about how I'm parenting them and schooling them and how it derails. Especially during these times of anxiety over health concerns. I have fears about the disproportionate amount of time I spend thinking about, praying for, weeping over, and planning for Amelia's needs. How do I tend to the others well when things like this are going on in our lives?


The one thing I know is this: in the most difficult season of all for me as their mother, these children are shipwrecked with me on the most amazing island of all - Grace. We are discovering together, me as if for the first time, the unsearchable depth of forgiveness and second chances that await all of us when we take hold of the forgiveness that is ours through the Cross. And while I have taped to my kitchen wall Ephesians 5:14-16 ("redeem the time"), I am coming to define it differently. There is always a tomorrow for times tables and not-throwing-sand-ever and learning your alphabet, but for character and love and Grace? That time is today, that season is always now, and I cannot afford to waste one moment.

Wherefore he saith, Awake thou that sleepest, and arise from the dead, and Christ shall give thee light. See then that ye walk circumspectly, not as fools, but as wise, redeeming the time, because the days are evil.

Try, try again


The hand clearly points to the desired action.


He tries rolling it there.


That doesn't work.


The hand decides to demonstrate desired action.


He tries to drop it straight in this time.


Now he takes another go at rolling it in.


Ugh, still no luck!


Maybe I should just give up.
Maybe putting my shoe in the hole is good enough.


Oh, I've almost got it! How invigorating!
Maybe kicking it will work?


Nope, that didn't work either. Shucks!

We do this ourselves, so often, especially in our relationships and with God. I often know what is desired of me, but I lack skill, confidence, or motivation to just do it. I end up running in circles around what's being asked of me, trying every human skill I have to reach the goal. I forget that the author and finisher of my faith is my ultimate golf bag of tricks. He knows exactly how I'm going to get that ball in the hole, and He asks me to seek Him for the things I need to accomplish it: strength, confidence, and motivation. My mental health issues of the past six months have made me feel weak and helpless. But in that very place, He provides, comforts, and shines His holy light.

Do you not know that in a race all the runners run, but only one receives the prize? So run that you may obtain it. Every athlete exercises self-control in all things. They do it to receive a perishable wreath, but we an imperishable. So I do not run aimlessly; I do not box as one beating the air. But I discipline my body and keep it under control, lest after preaching to others I myself should be disqualified. (I Corinthians 9:24-27)

...asking that you may be filled with the knowledge of his will in all spiritual wisdom and understanding, so as to walk in a manner worthy of the Lord, fully pleasing to him, bearing fruit in every good work and increasing in the knowledge of God. May you be strengthened with all power, according to his glorious might, for all endurance and patience with joy, giving thanks to the Father, who has qualified you to share in the inheritance of the saints in light. He has delivered us from the domain of darkness and transferred us to the kingdom of his beloved Son, in whom we have redemption, the forgiveness of sins. (Colossians 1:9b-13)




Callouses


cal·lous [kal-uhs]
1. made hard; hardened.
2. insensitive; indifferent; unsympathetic: "They have a callous attitude toward the sufferings of others."
3. having a callus; indurated, as parts of the skin exposed to friction.


The hardening of the skin is inevitable: handle the tool long enough, work enough hours with it, and your hand will shape to it, the dense patches of yellow skin forming a glove for that tool, that work.  First, the pain as skin pulls, fluid collects in the little blister there where the rub is, it bursts open and bathes your hand in the white fire of exposed flesh.  You keep swinging, and the burn becomes an ache, and then fades to nothing, and in a few days you pick up the tool and find that your hand likes this shape.  Remembers this shape.  Is made for this shape.


You can stall a good thing, pretty early in the game.  Toss the tool aside when the blister pops.  If you leave the work, walk away in a huff, it is your soul that grows a callous instead, a selfish callous, a callous on the heart that shirks pain for an easier path.  And every time you pick up the tool and set to work again, days later, the pain returns, the fire-brand pain of a tender layer of skin that has never grown into this work.

There are parts of my soul that have done this work before, the work of suffering physically and spiritually at the same time.  I go back to this work and find that there is a callous, that I am prepared, ready, and able for this task.  I am reminded that I carry not only the life of Christ in my soul, but also the death. (II Corinthians 4 again...we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed. We always carry around in our body the death of Jesus, so that the life of Jesus may also be revealed in our body.)

Let me die quickly to self in this matter, as in all others.  Let me shoulder the work at hand without frustration, lethargy, paralysis of the spirit or the hands as I am called into battle.  Give me strength for this round, God.  I am in the part of the match where I'm almost praying someone knocks me out.  Help me to stay present in this day, this week, this situation, this life.  Help me accept it as a gift from you, God...despite the pain of today and the pain looming large tomorrow.

I am reminded, by the words of an old hymn echoing in my synapses, that you have not forsaken me, and that your grace is shown for it's glorious perfection when I am weak and tired.

Great is Thy faithfulness, O God my Father;
There is no shadow of turning with Thee;
Thou changest not, Thy compassions, they fail not;
As Thou hast been, Thou forever will be.

Great is Thy faithfulness!
Great is Thy faithfulness!
Morning by morning new mercies I see.
All I have needed Thy hand hath provided;
Great is Thy faithfulness, Lord, unto me!

Pardon for sin and a peace that endureth
Thine own dear presence to cheer and to guide;
Strength for today and bright hope for tomorrow,
Blessings all mine, with ten thousand beside!

~ Great is Thy Faithfulness, Thomas Chisholm, 1923 ~

I PASSED!

"A faith untried is no faith at all," someone has said. Today I declared my faith before a hundred women and came home to a startling piece of bad news. Hopes were dashed, plans ruined, over a seemingly trivial thing. We did not know what to do. "Trust me" is always the word at such a time. "But Lord, we did trust You. You answered us and everything was working so beautifully. Now this. What shall we do?" "Keep on trusting me. That is my assignment for you tonight. Commit your way to Me; trust in Me; stand still and see."
Why, of course, Lord! I see what You mean. How could I be sure I'm trusting You unless You keep giving me "pop quizzes"? These are the exams in the school of faith.
"More precious than perishable gold is faith which has stood the test. These trials come so that your faith may prove itself worthy" (1 Pt 1:7 NEB).
~this oh, so appropriate tidbit from Elisabeth Elliot's devotionals


I passed my exam today, in under an hour, and now have some new credentials after my name to replace the good old BSN I worked so hard for 10 years ago!  Thank you for the prayers!

The dark path


But that was a long time and no matter how I try
The years just flow by like a broken down dam.
There's flies in the kitchen I can hear 'em there buzzing
And I ain't done nothing since I woke up today.
How can a person go to work in the morning
And come home in the evening and have nothing to say.
Just give me one thing that I can hold on to
To believe in this living is just a hard way to go
~John Prine~

Searching.  I am sure I have questions answered, so positive I practically skip instead of walking.  And then, in the darkness of a new time of testing, I turn my ankle in the same holes.  One minute, I have the clearest sight and surest perspective, as a worshiping woman confident in her faith.  The next, I am blinded by my ignorance and my tears as I struggle with the weight of the world and wonder from where help will possibly come.

Last week was Amelia's worst week.  I was suffering the worst heart rhythm issues I've had since last summer, and it was demanding my attention so that I might employ the limited means I have learned to prevent major catastrophe.  And I failed my comprehensive exam in my doctoral program.

I've been told that the testing and the agony and defeats are all signs that I am on the wrong path.  That the spiritual path planned out for me is a smooth one, with only an occasional divot...not like this one I am on, riddled with dents, rocks, and sticks on which to stumble.  I used to picture my "life path" as a mowed path through one of those ethereal forests I read about in books.  A smooth path, perhaps a short growth of grass, clover or wildflowers.  Filtered sunlight dappling the landscape.  Bird song lifting the spirit as I danced and twirled through the life God planned for me.

This place is very different.  It is a real forest.  The path is just a footpath trod by a few before me.  The thick underbrush hides the stones on which I turn my feet.  I constantly bend to push the branches away from my face.  The air is thick and close, and the sun shines through only rarely.  The light is a strange, dark and hallowed green.  There are thorns that scratch my legs, and the trees and brush on either side grow so thick they are impenetrable to my eye.  Am I navigating correctly?  Should I turn and go back, revisit some milestone to be sure I am still headed the right way?  What dangers lurk in the forest surrounding me?  I feel exactly how I feel coming home down the long valley behind my house, on a footpath just like the one I've described.  I have "peace that passes understanding".  If you are a stranger to my path, to my home, your only response to my sureness will be consternation.  But I am sure this is the path home.  I know it in my bones.  It doesn't matter a whit what the path looks like, nor how many stumbles, scratches or bumps attend my way down it.  It leads home.

There is so little I am sure of right now.  I am not sure how life will go for my sweet Amelia.  I don't know how epilepsy will affect her siblings.  I have no comfort for my tears at night.  I don't know how God is expressing love and mercy in my life right now.  I don't know with what clarity I will reflect back on this time in 5 or 10 years.  I don't know if the tens of thousands of dollars I've spent on a doctoral degree I have been called to study for will be wasted or not.  As my heart flips awkwardly in my chest, I don't even know what the next seconds hold.  Life is uncertainty, at best.

But I do know that the words of John Prine in the song I quoted above - however achingly beautiful and reflective of the struggle that is this uncertain life - are not my life's song.  I have found that "one thing that I can hold on to, to believe in this living is just a hard way to go".  Blessed is the man whose strength is in You, who have set their hearts on a pilgrimage, in the valley of weeping (Psalm 84:5-6).  God - the one who "will be who He will be" - the one I cannot understand...He is my one thing that I can hold on to.


In the morning, when I rise
Give me Jesus.

You can have all this world,
Just give me Jesus.

When I am alone,
Give me Jesus.
And when I come to die,
Give me Jesus.

Take time to watch this video. She says it better than I.

Passed from darkness into light


Sometimes the buffeting of this world tempts me to forget. There are days when I don't feel Him at all. Whole days. Comfort comes as I read the Word He provided for times like these. I open the Book, and I feel the comfort flowing immediately. Regardless of present suffering, I have so many blessings to remember. Instead of dwelling on what He has not done, I choose -mindfully, willfully, doggedly - to remember what He has done. Remember my word for the year - "abide"?

Remember those earlier days after you had received the light, when you stood your ground in a great contest in the face of suffering. Sometimes you were publicly exposed to insult and persecution; at other times you stood side by side with those who were so treated. You sympathized with those in prison and joyfully accepted the confiscation of your property, because you knew that you yourselves had better and lasting possessions.

So do not
throw away your confidence; it will be richly rewarded. You need to persevere so that when you have done the will of God, you will receive what he has promised. (from Hebrews 10)


Sorrow may endure for a night

Summer was looking pretty bleak, a few hours ago. The consummate pleasures of we Northern dwellers crescendo in the summer months...gardening, running around barefoot, swimming, the long shadows of afternoon sun glinting on aluminum softball bats, and the crickets song in evening. How much of that can you revel in, fighting cancer?

Deliverance.
Freedom.
"Sorrow may endure for a night, but joy cometh in the morning."

Aaron gave me a painting yesterday with four words in it: Dream big. [permission granted] And that's what God just did: permitted us to turn again to dreams. The pathology on the 2 inch tumor they removed yesterday came back, miraculously, benign. Which means a summer with hair, a summer without chemo or radiation or vomiting or slowly growing old. A summer without dying from cancer! My survival odds are back to 76% at 10 years. Which, albeit not great odds, is so much better than what we had to contemplate over the past week.

The cloud has passed over the sun, and we are bathed in warmth again. The rain shower has blown past on the summer wind, and we are left in the cool green fields of flowers and frogs singing. We are waiting to hear the katydid's lullaby and look forward to dipping our feet in the rushing ocean later this summer. I can sign the kids up for swimming lessons. I can take my comprehensive exam and continue pursuing my degree. I will be able to take walks, and stand being out in the sun, enjoy my friends coming to visit in June, go to weddings this summer and dance.

I can't wait to get my feet dirty in this field of joy.

In the garden of the soul

Show me the way that I must take; to Thee I offer all my heart. Teach me to do thy will for thou art my God. Keep me safe, O Lord, for the honor of thy name. ~ Psalm 143:8,10,11 NEB

This is the view this time of year of what I still think of as Steve and Amy's field. Pie in the sky dreaming, probably. The colors of spring are almost as vibrant as the colors of fall: the green of the leaves and yellow of the flowers beginning to break through the tarnished gold of last year's corn stubble on the ground; the pinks, oranges, and yellow flowing out of the black, wet trunks of the trees in watercolor blur; gray stick of the trees yet to blossom standing like punctuation marks between the colors.

Same landscape as my life these days, really. Cancer and hospitalizations and illness in the midst of the busiest season of learning are the punctuation marks between the colors. The vibrant colors of children's voices, laughter, scooters and bikes whirring on the deck boards of the porch and the rattle and hum of Big Wheels flying helter-skelter down the gravel driveway. The smells of bonfires burning, and brats over the fire, and clean, musky rain. The life overflowing with pain lends haunting sweetness to the life running over with small joys.

When I wake up in the garden
Peaceful slumber wakes my eyes
The sun and moon are always present
There are no more crying people around

Love fills all up inside me
Filling my heart with wishful dreams
No more sorrow fills my canvas
Along this lonely sea

Ships fall off of the horizon
Bringing love, peace, and joy
No fire can ever harm us
Only music fills the air

~ the voice of another worshiper found in an unexpected place:
Susan Tedeschi sings "In the Garden", co-written by Tedeschi
with her bass guitarist, Tommy Shannon, best known for his
days with Stevie Ray Vaughn

We sometimes imagine that God must eventually "sit us down" and "explain" his mysterious ways to our satisfaction. Let us suppose we have never seen a skyscraper. We discover a whole city block surrounded by a board fence. Finding a knothole, we peer inside. Huge earth movers are at work; hundreds of men in hard hats are busy at mysterious tasks; cranes are being moved into place; truckloads of pipes and cement are being unloaded. What on earth is happening? There is nobody around to answer our questions. If we wait long enough, nobody will need to. When we see the finished building, all the incomprehensible activity becomes comprehensible. "Oh! So this is what that was for."
"I shall be satisfied when I awake, with Thy likeness" (Ps 17: 15 AV).

A word for 2010

abide.
To stay; to continue in a place; to have one's abode; to dwell; to sojourn;
To remain stable or fixed in some state or condition;
To endure; to sustain; to submit to.
To bear patiently; to tolerate; to put up with.
To stand the consequences of; to answer for; to suffer for.


This year I will stay with God, continue in this place, take up my dwelling as a sojourner in a land of suffering; fix myself in a state of submission and endurance; bear cancer patiently, learn to tolerate it, stand the consequences of.
I will suffer for Christ.
Cancer is the mirror in which I see glimpses of bittersweet glory on earth. The reflection of Christ's love in a million small ways. The image of submission in my life. Cancer turns my imagination toward heaven, that blessed and everlasting healing of my mind, body, and soul. The pool of deep thoughts. This year, I will learn to abide with cancer - with God - in a new way.

I challenge you: pick a word for 2010?

idea culled from Ali Edward's resolution

Finding a new song


We've found it in the familiarity and trials of sisters finally together to embrace...to play...to relearn the boundaries of living in this family together. Well or ill alike.

We've found it in family celebrations cut short by sudden trips to the emergency room.

We've found it in celebrating our sameness and togetherness with a set of matching hair cuts.

I've found it - the reticent, type A mother that I am - in all the ways I've searched out to make Amelia love living, headaches, and stumbling, and speech impediments and all. Here she is with her radical new hair cut. I cut off that lioness mane with a few tears falling. Because it hurt her so badly every time I brushed or braided or piggytailed.

It's a new song.

There are a few discordant notes.

But we are singing it together.

An illness in pictures

Amy's last healthy day, October 8th - her first of three 3rd birthday parties!

Amy just post tonsillectomy. A little wan, a little thin and pale. Enjoying stories with Grandpa.


Siblings find something fun to do while Amy spent another day at the clinic being evaluated on October 22nd in Eau Claire. They visited Auntie Melissa's museum.

Third day at the Children's Hospital, October 29. Neurologists do one final assessment before Amelia goes down for sedation for a 2nd spinal tap.


Sisters peeking through the window before Amy goes down to the operating room. Family comforts Amelia inside the room. I have a distinct memory of this same experience when my brother Ben nearly died of pneumonia just after he was born. I still remember the ridges painted on the glass, how they felt beneath my fingers.

Happy to see us, even under the circumstances. Katy is concerned.

Grandma Nel enjoys a snuggle with Amelia before she goes to the operating room on October 29.

A moment of joy for Caleb when Kelley Downie met us in the lobby. I think we are all missing our home and our friends there!

The girls trick-or-treating at the children's CT/MRI unit. They were pretty excited about the "fairy door".

Katy was tired and concerned about her sister here, I think. The Child & Family Life Halloween party in the family lounge on October 30.


Amelia in costume #2 of October 30 - the official Halloween party day in the hospital. Her esotropia strabismus (right eye deviating toward the nose) began to be apparent on this afternoon. Most of her other issues are not visible in the photographs.

Nothing heals like cuddles.

...and stories from your uncle...

...and playtime with your auntie...

The "home" kids (as they call themselves) trick-or-treat in Auntie Rosalie & Uncle Dennis' neighborhood on Halloween.

Finally, a hug from Caleb! Since the cultures are coming back clear, we allowed the kids to visit in the room (!!) today to get some cuddles with their sister. On Monday, no children under 5 will be allowed through the hospital doors unless they need treatment. Another visit may be in order tomorrow.

And this is how I spent this evening. I had to go to the ER to be evaluated for bleeding. My ultrasound didn't find any baby, and the bleeding continues. This may just be early pregnancy break-through bleeding, and the baby may still be "invisible" due to size. I may also be miscarrying. I guess I'll just leave it at that. I am praying for a healthy baby. And God's will be done, however bad it hurts.


When I saw the break of day
I wished that I could fly away
Instead of kneeling in the sand
Catching teardrops in my hand
~ Don't Know Why, Norah Jones ~


*thanks, Grandma Debra, for all the photos.

Paths to exhaustion


Stress is one way to lose energy: I've been bleeding resources to that quite a bit of late. Daily life, fraught with small needs and simple consumption of time and motivation, exhausts resources in a different way. Children with the flu, laundry that is consequently out of control once again, and a Mama with no immunity left to fight the flu off. The latest cancer scare is over for the time being, and I've reached a stalemate in the battle to diagnose and treat my fainting episodes. For now, I am clenching my jaw and putting shoulder to harness in an everyday, work-at-home world. And praising God for every minute of work I have left in this body of mine.

A man can do nothing better than to eat and drink and find satisfaction in his work. This too, I see, is from the hand of God, for without him, who can eat or find enjoyment? (Ecclesiastes 2:24-25)