Showing posts with label I-131. Show all posts
Showing posts with label I-131. Show all posts

And so it goes


The little lead pot with the electric blue pill (this time a pretty cobalt instead of the usual neon) was delivered to me (finally) at noon today. They had forgotten to schedule my requisite pregnancy test prior to the dose, so I had to get that out of the way first. The photo above is the carrier on wheels that delivers the radioactive iodine to the dosing room. It is shielded with lead and has a geiger counter built in. Out of curiosity I googled geiger counters and lo and behold - you can own a portable model for just over $300 - less than an iPhone. Now if only Apple would come up with an "app for that"...

Some "radioactive headphones" I just had to have
After lunch with my mom, I settled in to a friend's peaceful home for an evening of movies and, apparently, some serious exorcism of the red-hot demon called radiation that had landed in my belly. It might be my imagination, but it seems like the side effects get worse every time I have to do this. Taste and smell vanished in the first 10 minutes as usual. Coupled with a wicked winter wind blowing snow devils up and down the street, and the whole world felt surreal and sterile by this afternoon. I have sores on my eyelids, lips, gums, tongue, throat, and stomach so far and I'm sure they will appear lower in my digestive tract tomorrow. My tears dried up and I have that familiar sandpaper feeling in my throat and my eyes now. Someone remind me to stick to bland foods after I take this pill next time! Without the sense of taste, I always go for something exotic and I end up regretting it after the 10th trip to the bathroom that evening.


Today is a down day. Friday will bring my scan. Yes, I get passed through a donut and get to watch a crosssection of my radioactive self on the screen (being careful not to twist my neck too far, of course - as soon as the tech catches on, she turns the screen away).

Thank you all for the prayers. I am so thankful I only have to do one cycle of this annually. I feel so much empathy for cancer patients who get weekly or biweekly radiation and/or chemotherapy. To feel like this for more than a few weeks would be so painful.

A weary prayer

I had my cancer doctor appointment yesterday. Potentially good news this time, which is a relief - but I won't know anything for sure until after my scan, which has now been set for "as early as possible". Given it is Christmastime, the "earliest possible" for me is January 3. I get injections the 3rd and 4th (Thyrogen - praising God anew for the insurance that allows me to pay for this $25,000 shortcut and remain on my medications). Then the electric blue pill - a mini dose of radioactive iodine 131 - for the scan on the 5th. After 9 a.m. on the 5th, I will be on my own without family once again. This is the hardest part of every year. You would think I'd be clamoring for a week off by this point, but I learned the hard way that it is an experience along the lines of "It's a Wonderful Life", and I would rather never do it again. Depending on the dose, I will be away from home for 5-7 days for the sake of my kids. Many disagree with me on this, but as a stay-at-home mom with homeschooled kids who like to crawl into my bed at night, I'm standing firm on my choice to take the most cautious road.

I learned that my lab values are climbing at an alarming rate, and that I am profoundly hypothyroid. Which means I have the following list of symptoms - great fun in the deep of winter here in the Midwest, let me tell you!
  • Severe fatigue
  • Sleepiness, sometimes sleeping up to 20 hours per day (not there yet, thank God!)
  • Depression, forgetfulness, feeling in a "fog"
  • Unexplained weight gain
  • Severe sensitivity to the cold/feeling cold all the time
  • Pale, dry skin
  • Hoarse voice and sore throat
  • Puffy face and swollen eyelids
  • Elevated blood cholesterol/increased risk of heart attack
  • Pain, stiffness, and swelling of joints
  • and about 100 other things!
That's the list of the non-embarrassing side effects I'm suffering so far. The doctor is confused about why my thyroid levels seem to be going backwards as he treats me. Two options: 1) the remaining cancer has finally finished dying and my body has no internal thyroid hormones, so I just require higher dosage (the potentially good news that my anti-cancer diet has done the trick); or 2) I have developed such a severe thyroid hormone antibody level that I can no longer convert the hormone in my body and my pills have quit working. This will mean a switch in medication that will make it more difficult to suppress my cancer - and my symptoms.

I guess all I'm up for today is reporting the "news". I am tired and my fingers hurt so typing is difficult. I also received news this morning that a close cousin's baby was born at 26 weeks (a full 14 weeks early), weighing 1 lb 4 oz. He is a sweet little thing, but so tiny! His pictures brought me to tears as I so clearly remember these tiny ones...we had a few in the pediatric ICU I worked on who came to us for heart surgery and stayed for many, many months. Please keep little Ian Louis Gumtow in your prayers.

To this tiny one trussed up, brought out so soon by complications for his mother...Lord, I try to wait on you, but I beg for strength for the weak and weary. I haven't felt like I'm riding an eagle in a very long time and how I long for your rescue. Amen... Come, Lord Jesus! (Revelation 22:20)

Strength will rise as we wait upon the Lord
We will wait upon the Lord, we will wait upon the Lord
Strength will rise as we wait upon the Lord
We will wait upon the Lord, we will wait upon the Lord

Our God, You reign forever
Our hope, our Strong Deliverer

You are the everlasting God
The everlasting God
You do not faint
You won't grow weary

You're the defender of the weak
You comfort those in need
You lift us up on the wings
Like eagles
~ by Benton Brown, my favorite version here sung by Jeremy Camp ~
based on Isaiah 40:27-31

I-131 recommendations

I have searched long and hard for information regarding safety after taking I-131 when around children. I finally looked hard enough to find some great recommendations, solidly based on science. And some mathematical formulas for calculating the dose of radiation I am emitting at any given moment after I receive my pill. I've received criticism from other cancer patients for choosing to stay away from home so long after my treatment and prior scans. That criticism makes it hard for me to stay away, because, believe me, I would prefer to be at home with my kids if I really believed it to be safe. I also think that criticism stems from the lackadaisical approach to nuclear safety our country has recently taken in order to eliminate in-patient management of patients post-radioactive iodine intake. It is important that someone on this vast Internet speak out about what is truly safe for others. Because going home and holding your children 24 hours after you receive I-131 is most certainly, scientifically, NOT safe.

For a treatment dose of 33 millicuries or greater, the recommendations are:
Try to minimize time spent with young children. Children under 12 must stay in a separate residence for the first 7 days. Maintain a 1 meter distance from children under 12 for 7 days. Eliminate holding children under 12 for 14 days. Minimize holding children under 12 for 21 days.

For scan doses 3-10 millicuries, the recommendations are:
Try to minimize time spent with young children. Children under 12 must stay in a separate residence for the first 3 days. Maintain a 1 meter distance from children under 12 for 5 days. Eliminate holding children under 12 for 5 days. Minimize holding children under 12 for 7-14 days.

These recommendation are culled from the University Health Network and the Health Physics Society. The U.S. Nuclear Regulatory Commission puts the annual dose limit for minors (under 21 years of age) at 0.5 mrems of total effective dose. Adults in the general population can receive up to 1 mrem annually. Radioisotope sodium iodide 131 emits 2.3 mrem/hr/mCi at 30 cm, meaning my 5 mCi of I-131 is emitting 11.5 mrem/hr at 30 centimeters from my thyroid. In plain English, this means that you hugging me for 1 minute means you receive 0.2 mrem of radiation. That's almost half of the ANNUAL dose limit for a child. That holds true for 2-3 days after I receive a scan dose of 5 mCi (as I did today at 12:30 p.m.). 1/1,000th of my scan dose could mean thyroid cancer for my child. That means my scan dose must be divided in half many, many times by elimination through my urine before it is safe for me to hold my child. As a co-sleeping mother, that alarms me. Enough to keep me away from my children for days. To strictly adhere to the guidelines I've been given - guidelines that are specific to my living situation, my dose, and my known elimination rate of I-131 as calculated by prior uptake scans at specific time lapses from previous doses.

One last note: the half-life (rate at which a substance is eliminated by half by the human body) of I-131 is 8.1 days. Not until two half-lives of I-131 will I be considered "safe" to have frequent, close contact with my children (holding them or sleeping with them). This means 24.3 days. So by mid-January, I can resume normal life. Until then, I do have to worry about exposing my children - and others - to dangerous radiation. The last thing I want to do is cause one of my offspring to suffer in this same way.