Showing posts with label weakness. Show all posts
Showing posts with label weakness. Show all posts

Note from the wilderness

Close-up of crack in broken tire chock
 We don't think of ourselves as fragile. Especially as Christians. We're strong in the Lord, right? (Ephesians 6:10) Yet, over the whole span of scripture, we read of mighty people becoming broken so that they can serve God in amazing ways: Adam, afraid in his nakedness; Jacob, who wrestled with God, and limped always afterward; Abraham, whose health and vigor failed long before God granted him the promised son; the prophets who retreated to the wilderness to be fed by ravens as they had squandered their last bit of strength trying to carry God's message; the many people Jesus healed, the weakest, sickest, most shunned - the social misfits and pariah.


We are fragile. Sometimes we envision ourselves as warriors fit for battle, but there is always the thorn in the side (II Corinthians 12:7), the fact that God's greatness is made perfect in our weakness (II Corinthians 12:9).

This is a season of brokenness for me. I don't know what God has ahead. Frankly, I am too exhausted from the recent battles to even care much about what the future holds. I know He has a plan, and I'm sunk back in His arms just waiting for it to unfold. I am sure others who've struggled with depression know this feeling. Wishing there were heaven-sent ravens coming to feed you while you rest in the sand (I Kings 17:6).

A weary prayer

I had my cancer doctor appointment yesterday. Potentially good news this time, which is a relief - but I won't know anything for sure until after my scan, which has now been set for "as early as possible". Given it is Christmastime, the "earliest possible" for me is January 3. I get injections the 3rd and 4th (Thyrogen - praising God anew for the insurance that allows me to pay for this $25,000 shortcut and remain on my medications). Then the electric blue pill - a mini dose of radioactive iodine 131 - for the scan on the 5th. After 9 a.m. on the 5th, I will be on my own without family once again. This is the hardest part of every year. You would think I'd be clamoring for a week off by this point, but I learned the hard way that it is an experience along the lines of "It's a Wonderful Life", and I would rather never do it again. Depending on the dose, I will be away from home for 5-7 days for the sake of my kids. Many disagree with me on this, but as a stay-at-home mom with homeschooled kids who like to crawl into my bed at night, I'm standing firm on my choice to take the most cautious road.

I learned that my lab values are climbing at an alarming rate, and that I am profoundly hypothyroid. Which means I have the following list of symptoms - great fun in the deep of winter here in the Midwest, let me tell you!
  • Severe fatigue
  • Sleepiness, sometimes sleeping up to 20 hours per day (not there yet, thank God!)
  • Depression, forgetfulness, feeling in a "fog"
  • Unexplained weight gain
  • Severe sensitivity to the cold/feeling cold all the time
  • Pale, dry skin
  • Hoarse voice and sore throat
  • Puffy face and swollen eyelids
  • Elevated blood cholesterol/increased risk of heart attack
  • Pain, stiffness, and swelling of joints
  • and about 100 other things!
That's the list of the non-embarrassing side effects I'm suffering so far. The doctor is confused about why my thyroid levels seem to be going backwards as he treats me. Two options: 1) the remaining cancer has finally finished dying and my body has no internal thyroid hormones, so I just require higher dosage (the potentially good news that my anti-cancer diet has done the trick); or 2) I have developed such a severe thyroid hormone antibody level that I can no longer convert the hormone in my body and my pills have quit working. This will mean a switch in medication that will make it more difficult to suppress my cancer - and my symptoms.

I guess all I'm up for today is reporting the "news". I am tired and my fingers hurt so typing is difficult. I also received news this morning that a close cousin's baby was born at 26 weeks (a full 14 weeks early), weighing 1 lb 4 oz. He is a sweet little thing, but so tiny! His pictures brought me to tears as I so clearly remember these tiny ones...we had a few in the pediatric ICU I worked on who came to us for heart surgery and stayed for many, many months. Please keep little Ian Louis Gumtow in your prayers.

To this tiny one trussed up, brought out so soon by complications for his mother...Lord, I try to wait on you, but I beg for strength for the weak and weary. I haven't felt like I'm riding an eagle in a very long time and how I long for your rescue. Amen... Come, Lord Jesus! (Revelation 22:20)

Strength will rise as we wait upon the Lord
We will wait upon the Lord, we will wait upon the Lord
Strength will rise as we wait upon the Lord
We will wait upon the Lord, we will wait upon the Lord

Our God, You reign forever
Our hope, our Strong Deliverer

You are the everlasting God
The everlasting God
You do not faint
You won't grow weary

You're the defender of the weak
You comfort those in need
You lift us up on the wings
Like eagles
~ by Benton Brown, my favorite version here sung by Jeremy Camp ~
based on Isaiah 40:27-31

Healing



You cause the lame to walk
You open lips to talk
You calm the storms at night
You turn the dark to light
My savior
my healer
redeemer
that is who You are
creator
my maker
my father
that is who You are
~ Desperation Band, Who You Are ~

I remember the time surrounding my original diagnosis with cancer vividly. I remember being very uncomfortable with God as Healer for a very long time. After all, I still - 2 years later - have cancer. I am not healed. It hasn't been dramatic. We read in Matthew 17 this week in church - the healing of the lepers. When I look down at my body, I still don't see the healing. But I guess I will start walking, as the lepers did, before the healing is evident. Trusting He is who He says He is.

There is powerful evidence of healing in the sum total of everything God has done, even in this short vignette that has been cancer. A timeline:
Cancer diagnosed ⇒ Healed by surgery 6/18/08
Lost voice 6/19/08 ⇒He "opened lips to speak" on 7/2/08
Cancer grew back ⇒Healed by radioactive iodine 11/08

~~~We praised God for no sign of cancer in March '08! ~~~

Tumor markers positive 12/09 ⇒We wait on Him for healing again

Meanwhile, reveling in the countless small joys He hands down in these syrup-sweet days of the freshness of the trial. Expectant...watchful...adrenaline rushing...leaning, trusting days of the honeymoon of cancer's reawakening.

Extraordinary

Somewhere along the line I decided I was invincible. Oh, I admitted I would someday die, but until then...invincible. It was right around the time I had to face up to the fact that I would someday die. Around age 19. I felt the tautness of youth in my muscles, the energy propelled on by the drugs that kept my heart beating, the refusal to sleep for fear of wasting precious time. I remember wearing a shirt that bore the motto, "You can sleep when you're dead." And I truly believed it. Rest was for the weary, sleep was for the weak, reflection for the elderly.

One day, once a year, I resurrect that spirit from the ashes. I rise early, pull on my oldest clothes, forgo my shower, and head outdoors, whatever the weather. My body coils and springs again as I chop wood. I lay down in the dirt, and light fires, and breathe smoke. Maple syruping time is the one time I relive this youthful pipe dream of invincibility. I hope I never see the day when I have to lay aside my ax and give it up forever.

That spirit of invincibility carried me through a dark, dark day when my heart actually stopped. When I try to think back to that day and figure out why I acted in certain ways, it still makes no sense to me at all. I collapsed in a hallway at work - thankfully, work was a hospital - and came to during my third shock as defibrillator pads sent an arc of electricity through my chest. I don't remember collapsing, although I do remember having an odd sense of impending doom while finishing my shift, which caused me to check on my patient about 100 extra times before I completed my work. When I came to, I made a miraculous recovery, and refused to even allow the doctor to call my parents. That streak was there from the start of my health problems, and, to this day, I don't understand what about heart disease made me push my parents away as a young person. I wonder sometimes if it was a sense of frantic lack of control, the idea that I would never be an independent, healthy adult? I wonder if I tried to protect them? Whatever the reason, it was a nearly uncontrollable, animal urge, and reduced me to an automaton at times. Like when I told the doctor I would not give him their phone number the day my heart stopped. I regret it, sometimes. On the hand, I lived through it.

And kept on my invincible course. If my heart stopping didn't kill me, what would? I wasn't a particular risk taker, although I enjoyed crazy hobbies like snowboarding and whitewater kayaking, and did weird, random acts of insanity like jumping from a perfectly good bridge into a shallow river and skydiving from a perfectly good plane. Oddly, cancer hasn't inspired a second surge of "Bucket list" type activities - instead, I am cataloging the simple pleasures and stocking up on hundreds of hugs from my kids and fabulous evenings with my husband.

Somewhere around the time of my radioactive iodine treatment, I began to feel vincible. Death, of which I had always been aware, didn't seem that much more real; but weakness did. I began to feel the life blood course a little slower, I felt the tautness melt out of my muscles as I gained extra pounds of flesh fed by stress, sorrow, and a drastically slowed metabolism.

This week, I had just one glimmer of the old self: in the chopping of the wood, the starting of two fires, the brave cooking outdoors on a windy, bone-dry spring day. The chatter of children floating on the wings of the wind, and moms reveling in the smoky morning tradition. For tradition it has become now, after 5 years: a sausage and pancake breakfast cooked over an open fire; the steam off the sap scenting the air; the walk up into the sugar stand to touch the skin of the maples and taste the drips of icy sap flowing down metal taps. I emerged from a week of extraordinary weakness to feel extraordinarily invincible once again.

Now I realize it is just another gift from God. Although I do fuel the fire of the energy myself, clawing down deep to find a hidden reservoir, He fans the flame. He gives the sun, and the unseasonable warmth, and the friends to help chop the logs and load them onto the fires. Some trust in chariots and some in horses, but we trust in the name of the Lord our God.They are brought to their knees and fall, but we rise up and stand firm. (Ps. 20:7-8)

I am invincible. This week especially, I am reminded that my Lord destroyed death. There is absolutely nothing that can destroy me...because I am covered with His righteousness. (Isaiah 61:10) His extraordinary strength has been completely revealed to me in my extraordinary weakness. Two days ago, I chopped wood like I was 20 again. Today, I am laid up with a chest cold-bordering-on-pneumonia due to my lowered immunity, and yet can hardly sleep because of the cancer suppression drugs that are currently wreaking havoc with all body systems. I take nothing for granted but this: Christ died, Christ is risen, Christ reigns!

Allegory

flowers are to a dark room as love is between sinners

Out of the fry pan...

It gets tiresome to report bad news. We are, at the moment, jumping out of the frying pan and directly into the fire.

My oncology appointment went...well and poorly. Well in the sense that, because of my current lifetime dose of radioactive iodine, and the amount I am expected to need in the future, I won't have an ablation at this time, nor will I have another scan until November, 2010. That is excellent news, as I hate to be separated from my family for the long periods necessary after the iodine scans.

Then came the bad news. I have two tests each time I go for a scan, the whole body scan, which looks for iodine uptake: this came back relatively normal, with minimal uptake in my neck and lots of uptake in my pelvis (typical as the iodine is eliminated by bowel and bladder). Secondly, I have a blood test for a tumor marker (thyroglobulin). My tumor marker, which had been mildly positive even after the surgical removal of my cancer, was completely negative after my ablation: the best news possible - it appeared that all of my remaining thyroid tissue and cancer was killed by the ablation! At three months post, in March, my tumor marker level was 0.05, considered "undetectable". Remember the celebration?

Now my thyroglobulin is 2.5 ug/L. That's 50 times higher than it was just seven months prior. Yikes. While it is still within my doctor's "acceptable" range - meaning I don't need another ablation (treatment) dose of radioactive iodine in January - it is high enough to confirm that there is active cancer somewhere in my body. It is somewhat concerning that not much showed up on the scan, because that means we still don't really know where the cancer is lurking or whether or not it is still susceptible to the radioactive iodine. Both my endocrinologist and OB/GYN surgeon are very concerned about the mass on my ovary in light of the new lab test value. The OB/GYN has previously said it is probably a cyst, but this was without full understanding of how my tumor manifested in 2008. Of particular concern is the appearance of the mass on ultrasound, as well as the similar level of growth following a pregnancy. There is still a chance that the mass could be a large hematoma that is not being reabsorbed, or an abcess.

But the most likely option is cancer. Thyroid cancer growing on my ovary. Metastasis.

I am scheduled for an ultrasound tomorrow to get another look at the mass, which can now be felt from the outside on my lower abdomen. I will have surgery at 10 a.m. on Monday, January 4th. My surgeon will start with laparascopy, and then move to an open abdominal incision if it looks like either cancer or abcess. Obviously, recovery from a laparascopy - as well as an outcome of finding a cyst rather than a tumor! - would be highly preferable. I would beg for prayers to that end.

I am trying not let worry carry me away. What would it really profit me, at this point? I can't do anything beyond what I've already done. I suppose I should have had it removed earlier, but it just didn't work, with cancer scan and Christmas filling my schedule. It is altogether too reminiscent of my original diagnostic experience with the original cancer in June, 2008. The constant reassurances that it would be so improbable to have that large of a cancerous tumor suddenly appear on my ovary. The nagging feeling that I knew this was coming - this specific thing. I read several articles (preview here and here) about this rare occurance last year when researching prior to my ablation. And I just had a gut feeling it would be me in those shoes. I don't know why. That just means I won't be shocked if it's cancer, I guess.

Jesus, I am resting, resting,
In the joy of what Thou art;
I am finding out the greatness
Of Thy loving heart.
Thou hast bid me gaze upon Thee,
And Thy beauty fills my soul,
For by Thy transforming power,
Thou hast made me whole.

Ever lift Thy face upon me
As I work and wait for Thee;
Resting ’neath Thy smile, Lord Jesus,
Earth’s dark shadows flee.
Brightness of my Father’s glory,
Sunshine of my Father’s face,
Keep me ever trusting, resting,
Fill me with Thy grace.
~ Jesus, I am Resting, Resting by Jean Pigott, 1876

Headwinds & tailwinds

I went for a bike ride Saturday afternoon. It isn't every day that I can go on a bike ride at a moment's notice. I usually have to recruit at least one additional adult! To date, I have three kids who can zip along as fast as training wheels will take them, and one who can't even peddle yet. Despite the various carriages, seats and other contraptions we've amassed to haul them along attached to our bikes, it still isn't a one woman job to convey four children plus self on a leisurely cruise through the neighborhood! With my children slashed to just two toddlers for the week, I took advantage of my new-found freedom on wheels. We set out on this blustery Saturday, with a steady wind of about 15 miles per hour and gusts far stronger than that. As I rode past the farmer's wheat field, the rustling and rushing of the wind through the grass was reminiscent of the moors of England which I've always longed to visit. The sound of the wind blowing through the trees and crops created such a whir that nary another sound could be heard. Occasionally it died down sufficiently to allow the bird songs of spring to break through. We clipped along with the wind at our back, visited several neighborhood horse pastures to see the colts and fillies of this spring's birthing, and threw rocks in the creek. I congratulated myself at being so fit as to barely notice the fifty-plus pounds I was pulling behind me on my first bike ride of the year.

Then I turned around to head home. And found, with some surprise, that I had been considerably helped along my merry way by the wind which was blowing straight at my back. And now blew straight in my face. Surprising how much wind resistance a bike trailer, two toddlers, and a rather wide and out-of-shape mama can create! We struggled on and on, mile after tedious mile (all four of them!), wondering if we would ever make it home. I had to pause a few times to walk the bike, children protesting to "Go faster!" from the back, legs like jelly. I remembered this feeling, that deep, muscle memory of countless endless bike rides home when my legs spent all their energy carrying me farther away with no thought of how I would make the return trip. I made many such trips as a child. I remember the cracked lips of cottonmouth, and the aching hips perched far too long on a skinny bike seat. I remember, yet I forget.

I do the same thing with God, and that's why he sends a little headwind my why every now I then, I imagine. I fly on my merry way away from Him, exploring, testing my wings, glorying in my strength, wit, beauty, resourcefulness, intelligence, frugality. The wind is at my back, speeding me along with a false sense of my own ability. With the wind at your back, it is easy to fly along without taking note of how far you've gone. When you turn about to head back, the wind reminds you of the long journey home. Any sin is like that: I remember going out for drinks with friends in college and never noticing how far past my limit I was until it was much too late, and the consequences had to be borne as I fought my way back to my normal, sober life. How about eating? Easy, isn't it, to put pounds on, and so very difficult to shed them. Sleep? I constantly stay up much too late and don't notice the time until I suddenly realize I have to wake up in a few short hours of interrupted slumber.

Cancer has been my headwind, recently. It reminds me how close I must draw to Christ to survive the journey home. If the wind were at my tail, I might quickly forget - I have quickly forgotten - and begin to suffer from "supermom" syndrome again. Although it's never fun to fight the wind in your face, to push hard against the peddles and make such small progress back, it is good to be reminded. This world is hard, and I am weak. I am in need. I am thankful for saving grace.