Showing posts with label hypothyroidism. Show all posts
Showing posts with label hypothyroidism. Show all posts

Anxious thoughts

If I take the wings of the morning


and dwell in the farthest part of the sea


Even there thy hand will guide me,
and thy right hand will hold me.

Image credit Horia Varlan
Search me, oh God, and know my heart,
try me and know my anxious thoughts.
See if there be any hurtful way in me
and lead me in the everlasting way.
Psalm 139:9

Radioactive iodine to be swallowed at nine. I am worn out, but I feel ready. If nothing shows up on my Friday scan, this will be the last one for a while. After this, if there is no visible cancer, next year will bring Thyrogen injections (to reverse my thyroid hormone) and tumor marker labs every 6 months. I am praying this will happen - please join me!

Novemberish


 The weekend dissolves into a chaos of sleep and awake, night shifts wrecking havoc on my already Novemberish brain. The house a pigsty of dirty dishes and laundry, summer clothes and shoes yet to be packed away, a sheet music scattered living room and clothes-riddled bedroom. I feel my failures deep and sure, the housewife that never can be found in November, when the seasons hush and slow to winter's lone-harp song, and my body slows with it, always sensitive to cancer meds in this fresh winter. I bog down into low thyroid days, when all I do is sleep or dream of sleep. The children call me Mama Bear, hibernating for the winter, and I wonder why my cubs don't climb into the den for a long winter's nap like the black bear in the woods.


On Saturday, we are up late to cheer my hockey team on at an important semi-final in a tournament, and I sit with hockey moms who are still perfectly coiffed at 10 p.m., talking about how much housework they got done between games today, each mom one-upping the last with her beauty and time efficiency. I feel the prickles of my newly growing hair like a crown of shame, think about all I have not managed to do this weekend, and realize this is what Joy is after: life unmasked in the blogosphere, where we let our imperfections be part of our beauty and don't hide in the dark when life doesn't go as planned. I slide on thankfulness like a warm coat, and insulate myself from the tyranny of this perfectionist motherhood. My husband smiles down at me, sensing my soul rest, his brown curls unruly under his wool cap, our children running amok up and down a ramp to the men's bathrooms, burning off late night energy.

I wake up Sunday to a road too icy to trek to church, even in all-wheel drive. Slide under the down comforter and praise for a few more hours rest. In the sunlight, the world is frosted with snow, a wonderland of crystalline beauty, in all our yards autumn messiness. The children track mud and snow into the house and there is a small snowboot track on my sheet music still scattered on the front room floor.

I don't have time to maintain these regrets when I think about how He loves. ~John Mark McMillan
Instead of sliding down into the nothingness that perfectionist thinking breeds, I count my blessings at Sunday's end,

...the white glare of snow making sunshine bright and world clean
...hair growing back, black and plentiful
...music from The Story blaring through speakers
...safety on icy roads
...moments with my dear aunt and uncle
...Sunday dinner with Grandma and Grandpa, gales of giggles echoing
...sleep, sleep and more sleep
...another week of night shifts winking at me
...down comforters and warm husband

Living water

I wasn't born with a demonstrative bone in my body. From Scandinavian and Native American heritage, I come from people who are generally quiet...until you get to know them a bit. But you might not know that if you just met me now. I played softball with some outspoken girls in high school and hockey with a bunch of wild women in college and learned to shout, and hug people I didn't know that well, and give high fives and slap the ice when something really cool happened. Started attending a more flamboyant, rock-band type of church in 2000 and learned there to lift hands in prayer (Psalm 134:2 and I Timothy 2:8). Cancer has been refining me since 2008 and teaching me what is important and whats not...and often social mores mean less to me than showing someone I love them or telling them when, why and how they impacted my life today.


I thought about all this in the shower, of all places. I hop in as quickly as possible when I wake up. By the afternoon, my hands are clamped in claws that won't bend and I hop back in the hottest shower I can stand to thaw them out again from the crippling arthritis that comes part and parcel with severe hypothyroidism. So there I am every morning, and again every afternoon, worshiping in the shower. My hands feel better elevated...so over my head they go. Right up into the hot water stream. And the praise literally is wrung from trembling lips as the pain dissipates in that wonderful, warm liquid plumbed up from 100 feet under the frozen ground and heated in my basement. God is good!! (can I get an amen?) 

Yep. I took a picture of it. That's how much I love my shower right now!
I hop out of the shower and dress as quickly as I can to go cuddle my almost-3-year-old baby son who's waiting patiently for his daily naptime cuddle. And he smells so sweet. You know why? Water. Hot, fresh clear water. Those 12 hours after his bath, it's almost like I have a baby to sniff again (until he gets into all the things that boys inevitably do). I bury my nose in his neck while he strokes my hair, and it's a quiet praise in my heart that brings tears springing to my lashes. Caleb looks up and says, "You dripping on me, Mama." Then we do our little routine: I say, "You're my favorite little boy in the whole wide world." And he replies, sweet and sleepy and heavy-lidded, "And you're my favorite Mama in the whole wide world." And we melt into sleep in mama-baby bliss.

Lovin' the waves in South Carolina just after my pacemaker surgery this summer.
I know why Jesus calls Himself the Living Water, folks.

This stuff is the miracle liquid that none of us could do without. Your body is made up of 60-70% water. About 71% of the earth's surface is covered by water in any given year. If you've ever visited a third world country, you know to what lengths people will go to clean water. I've drunk mine with bleach in it, and I've showered in ice cold gravity showers that left me with a clear understanding of the virtues of bathing once a week. I've washed clothes in a not-so-crystal-clear river and I once rode a kayak on an absolutely filthy garbage-littered beach.

Sediment settles on the Lake Superior shore in May.
Fresh water is one of those things I've taken for granted most of my life. Living water? Where do I find that? Now that's some water to worship!

On the last and greatest day of the Feast, Jesus stood and said in a loud voice, “If anyone is thirsty, let him come to me and drink. Whoever believes in me, as the Scripture has said, streams of living water will flow from within him.” By this he meant the Spirit, whom those who believed in him were later to receive. Up to that time the Spirit had not been given, since Jesus had not yet been glorified. John 7:37-39

A drop of rain "held" by an impatiens petal in June.
The Holy Spirit. Living in me. Streams of living water flowing from within me? It seems impossible. I am coming out of a time when I spent more time looking at flaws and examining my spirit for darkness and dirtiness and filth. It is hard to imagine that, if I just step out of the way, there is a stream of living water waiting to flow right out of my heart. I think on this one I've got to take an A to B approach. I believe in Christ. Therefore the Scriptures said (and Jesus Himself said too) that streams of living water will flow from within her.

I think I forget it all the time. Living Water lives in me. I have the opportunity to yield, at every turn, to Living Water.

Two sisters I love walk down into the water to be baptized.
Just a few thoughts from the girl singing in the shower with new vigor in these pain-wrought days, living with cancer in the Midwest when it is zero degrees out. Tomorrow maybe I'll write about down, wool, or the miracle of electric heaters!

Desperation & drudgery

Hello darkness, my old friend
I've come to talk with you again
Because a vision softly creeping
Left its seeds while I was sleeping
And the vision that was planted in my brain
Still remains
Within the sound of silence

In restless dreams I walked alone
Narrow streets of cobblestone
'Neath the halo of a street lamp
I turn my collar to the cold and damp

~Sound of Silence, Paul Simon, 1965

Tired of telling you, you have me
When I know you really don't
Tired of telling you I'll follow
When I know I really won't
Cause I'd rather stand here speechless
With no great words to say
If my silence is more truthful
And my ears can hear how to walk in your way

In the silence
You are speaking
In the quiet I can feel the fire
And it's burning, burning deeply
Burning all that it is that you desire to be silent, in me
~ In the Silence, Jason Upton


Here it is again, this old familiar place, where the rubber meets the road. We survived the separation, we survived cancer again for a 3rd time. Now we wait for results. And survive the consequences of cancer. They are never easy: taking yourself to the brink of hypothyroid death, taking your children to the edge of sanity, taking your husband into a new realm of miserable coping. Mouth sores are healing, and now my hair is falling out in chunks and my skin is dry and numb. My fingers and toes are completely dead, like chunks of wood I haul around with no purpose. My eyesight is blurry, my body aches, especially the joints in my arms, legs, hands and feet. I feel as though I'm on the brink of another double kidney infection - but it's just my body in its inability to handle the slough and crud that builds up over time in every cell and joint and space. Pain reaches a peak around 11 a.m. and then improves with a nap (meaning the laundry and cleaning still isn't getting done), peaks again just after dinner, and improves when I take my daily Synthroid dose at 8 p.m. Add to that the symptoms of hyperthyroidism because of the high dose of Synthroid! My body is getting deliberate double messages. Never a good thing. My heart rate is 140 between 10 p.m. and 9 a.m. Weird! Especially for me - I usually run very low on the heartrate spectrum, around 55 during the day and around 40 at night.

The kids are so, so sick with this latest cold. I am stressed as I watch Amy deteriorate because of asthma and lung gunk. She is requiring nebulizer albuterol for her asthma every 3-4 hours today. She still has good energy. I find I am so much more paranoid since her encephalitis in October/November. I don't want to miss something and end up in the hospital with her over Christmas. Of course, how could I know. I just have to trust, and be watchful, and try to hand it over to God.

I feel as though I've descended further into darkness since coming home, rather than emerging as I expected. God feels very, very far away today, as I struggle through the inconsequential and exhausting work of motherhood. Just being alive in my own skin feels like work. I feel depressed, knowing this is my lot for so many more years, even if it is only once a year in the future. How can I survive this? How am I going to ever bring glory to God through this? I feel miserable, I feel like everyone around me is miserable as well.

And then, just for perspective, at least I am not going through this today:
http://cecemeetsworld.wordpress.com/losing-eli/