Showing posts with label tumor. Show all posts
Showing posts with label tumor. Show all posts

Scheduling the next scan


I sit in the familiar off-white office, with the cups stacked neatly on the shelf, and a few panoramas of autumn leaves. The doctor squeezes my throat hard as I swallow water from the cup, feeling for tumors in my neck. There are none. The rest of the appointment breezes by - yes, my calcium is still low, so I have to keep chomping down the Tums. My drug levels are perfect for suppressing cancer growth, which means I'm tired for some other reason. He hands me the white sheet with the schedule for my cancer scan in January, and I am suddenly floating, untethered from reality, off into the whitewash of the fluorescent light.

And so a day comes and goes, and I measure the week in doctor's appointments, therapy, naps. My mother comes to stay since I chose to stay at home through my latest bout of suicidal thought and nightmares, flashbacks. I convalesce in my bedroom under the comforter.


One more scan, one more long vacation from home, one more chance to find the tumor lurking. Then the doctor says we can just follow my tumor markers since the scans aren't finding the tumor anyway. I don't know what's worse: having the scans to find the supposed tumor, or giving up and living with the tumor. In any case, I'll try not to think about it until January 16.

Mid-night journal

Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God. ~ Philippians 4:6


This verse is an oldie, but goody (my brother Daniel used to say that as a small boy, and it still tickles me deep within to say it). Tonight I am up as the first pink glaze of sun appears in the pines out my bedroom window, heralding the end of night and beginning of another morn...up all night trying hard to put actions to this verse. It has been a night of prayer, a night of reading, a night of closing my eyes in near delirium and still the prayers flow and the sleep does not come.
How many times had patients sat there waiting for her to announce her decision after a similar moment of respite? Invariably the decision was based on science and statistics, a conclusion crosschecked and attained by logic. What a cask of horrors, she now thought, lies concealed in this moment of respite! Dontsova had known what she was doing when she had concealed her pain from everyone. You only had to tell one person and irresistibly the avalanche was set in motion, nothing depended on you anymore. Her ties in life, which had seemed so strong and permanent, were loosening and breaking, all in the space of hours rather than days. In the clinic and at home she was unique and irreplaceable. Now she was being replaced. We are so attached to the earth, and yet we are incapable of holding onto it. She was so used to taking personal charge of everything that even today she couldn't leave a single person without making at least a month's mental forecast. She was getting acclimatized to her misfortune. She examined, prescribed, and issued instructions, gazing at each patient like a false prophet, while all the while there was a chill running down her spine. These were the thoughts that plagued her and weakened her normal resolute cast of mind. She looked at one patient...they had given so much of themselves to try to save this quiet Tartar, yet all they had won was a few months' delay. And what miserable months - a pitiful existence in an unlit, unventilated corner.

It made Dontsova realize that if she rejected her own yardstick and adopted Sibgatov's, she could still count herself lucky. ~ from Cancer Ward, by Aleksandr Solzhenitsyn, true stories based on his own 2 year battle with cancer in the mid-1950's

As the bleeding heart blooms in the spring afternoon sun, I contemplate losing a part of self. Not just figuratively, like last time, but literally this time. I agonize over the prayers I've prayed of willingness for cancer. I long for a different, easier way.

I walk around the house, and see the writing literally written on my walls...the signs that open the door for this kind of trial, let God in to tear things down and build them back in a totally different shape. I start at the front door, and the words flow in this order: with God all things are possible. As for my house, we shall serve the Lord. Love like there's no tomorrow. A cord of three strands is not quickly broken. Verses, sayings that reflect our intimate understanding in this marriage and house that this is only temporary. The suffering is temporary, the joy is temporary, the work is temporary.

What am I supposed to do with the fact that we are so far outside the realm of normal experience that most people are simply confused by our story? We have asked ourselves and each other times innumerable whether this is a wake up call. We still don't see it, if we are being woken to something...and that is so frightening! How much further might God push to show us what we seem to be blind to? And might it not be a powerful Evil that foists this suffering upon us? Might we have something in our future that is so definitely for God's glory that Satan might try to destroy it? And why, then, would God allow it? Could we really be a modern day Job story, a modern day David, hunted and oppressed and beaten and crushed? Could we share the sufferings - and deliverance and beatitude - of Paul, Timothy, Noah, Moses, Elijah, heck, all the prophets?

The next step comes Wednesday. I have surgery at 10:30 a.m. to remove the lumps. They will be biopsied for cancer, perhaps sent to a specialty lab if they come back one certain type...follicular, the type of thyroid cancer cell origin, and also possible in the breast. We may know immediately - and I may lose my breast on Wednesday, too. Or it may take weeks. But at least the lumps will be out, gone, frozen in liquid nitrogen and sliced and examined and done with. What follows is a big question mark that has me sleepless, petitioning, taking fear into my two hands and throttling it with Scripture. So many questions have no answer...but what to do? is not one of them. I simply pray. I plead. And I read.

Hiding in the numbers

I spent yesterday trying to gather information from various doctors about my latest medical tests. I was unable to get anyone to read me the final pathology report on my tumor, which was exceedingly frustrating. I did manage to get ahold of a sympathetic nurse who read to me from my electronic health record, although she didn't have much to offer in terms of interpretation. I gleaned a little information from this: several blood tests that have been normal since my surgery in June are now abnormal. I have tumor markers present in my bloodstream and also a positive thyroglobulin value. Both tests were drawn just prior to my radioactive iodine, which yields a ray of hope that the iodine may have destroyed the active cancer that was brewing in my body at that time.

The tumor marker test looks for cancerous genetic material in my blood stream. The bad news is that only tumors that have access to blood supply can be tested for in this way. Recurrent tumor markers are associated with malignant metastasis (dangerous spread) in over 90% of patients with papillary carcinoma. A positive value for this test indicates aggressive disease rather than the slow-growing cancer that I have been told to expect.

The thyroglobulin test is less clear-cut. It could indicate that the remaining thyroid remnant in my throat was functioning somewhat. However, in combination with the tumor marker test, it can be used to indicate recurrent or metastatic disease. But this test is generally less compelling than the last test.

If you've been reading here for any length of time, you know I normally don't coldly report on lab tests and statistical risk. Today I hide in the numbers. My family is circled close in a spiritual and emotional sense; circling our wagons. Consternation, fear, sorrow, remorse. Emotions are running high. I will write more when I have the heart to.

"Be careful what you wish for"

God, my God, I cry out
Your beloved needs You now
God, be near, calm my fear
And take my doubt

Your kindness is what pulls me up
Your love is all that draws me in

I will lift my eyes to the Maker
Of the mountains I can’t climb

I will lift my eyes to the Calmer
Of the oceans raging wild
I will lift my eyes to the Healer
Of the hurt I hold inside
I will lift my eyes, lift my eyes to You
~ I Will Lift My Eyes, Bebo Norman

I received news today that my prayer has been answered. In a difficult way. Samples of my tumor were sent three weeks ago to Pennsylvania, and a report and interpretation of the findings from both the pathologist and the specialist at the University of Chicago were sent to my doctors. The pathologist asked for the entire tumor to be shipped to her for further testing. She has since sent a final report to my team of doctors in Eau Claire and Chicago. However, the endocrine specialist was out of the office today for the holiday, and my regular general practice doctor didn't feel capable of giving me the results himself. It is difficult to know what to make of the entire situation, other than to lean on the fact that I asked God to stay the news, and He has.

In the midst of my heart breaking and my insides turning wrong side out, my brain is trying to make sense of this. I am trying to strike a balance between responding to the news I've been given without overreacting and assuming the worst, which is my natural bent.

Mostly, I feel completely inadequate to express any of the rawness I feel right now. I am in one of those "beyond words" moments, of which I have had so many...positive and negative...in the last six months. I feel bruised and I will try my darnedest to love and savor this Christmas with my family.

Whatever God has for me in this life, I know that through the miraculous birth of my Savior over 2,000 years ago, my tears will be wiped away. I may be in the tragic, perilous, fragmented and uncertain middle ground of my fairy tale, but I will live "happily ever after" someday.

Man is a mere phantom as he goes to and fro: He bustles about, but only in vain; he heaps up wealth, not knowing who will get it. But now, Lord, what do I look for? My hope is in you. Save me from all my transgressions; do not make me the scorn of fools. Hear my prayer, O Lord, listen to my cry for help; be not deaf to my weeping. For I dwell with you as an alien, a stranger, as all my fathers were. from Psalm 39