Amelia in her new hospital bed on Saturday.
I don't have time to write more, so...please pray for us at Mayo this week!
The conditions Amelia is being evaluated for over the next week or so are listed below:
- Bacterial infection of the central nervous system with Propionibacterium acnes
- Genetic mitochondrial disorders, such as Leigh syndrome or MELAS
- Pseudotumor cerebri
- Panayiotopoulos syndrome
- Pediatric multiple sclerosis
- Multiphasic or recurrent acute disseminated encephalomyelitis (MADEM)
- Spinal tap, or lumbar puncture, which is similar to receiving an epidural during labor
- MRI (magnetic resonance image) and MRV (magnetic resonance venogram) of the head; the MRV hasn't been done ever before, and will examine the veins helping drain her brain of excess fluid
- EEG during wake & sleep times, as well as a symptomatic EEG to be performed in an emergency setting when she is experiencing nystagmus (eye jerking)
- Examination with photos taken of the optic nerve fundus, the part of the nerve that is visible at the back of the eyes using a special camera
- Laryngoscopy & possible MRI of the neck to explore possible neck infection sites
- Appointments with doctors in the following areas: immune system function, nervous system function, eye, and ear/nose/throat.
1 comment:
Poor little thing having to go through all those test. I pray that the tests locate the problem and that it will be resolved. I pray for her to be healed. Praying for you and your family.
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