Showing posts with label pleading. Show all posts
Showing posts with label pleading. Show all posts

When things are just too much

A thundercloud mounts a towering anvil of peach grandeur against the backdrop of the torrents of gray rain falling on one side of the horizon and the pink sun just kissing the hilltops on the other. We are driving home from a baseball game, rag dolls bouncing along in the humid air with OneRepublic blaring from the iPhone to keep Amy content. 

The kids and I cleaned house today, trying to progress ever closer to our goal of organized and simple (and mostly failing dismally). We basked in the hot sun together. Smelled wildflowers. Cuddled kittens. 

Being in grieving, for any reason, is like walking on a road full of mud puddles. If the road were dry, you'd spot every pot hole. But with standing water everywhere, it looks deceptively flat. You're so excited to go dance in the puddles, and you never know when one will take you by surprise and land you on your butt in the mud because it is deeper than it looks.


And so the alien landscape that you find yourself suddenly plunged into when something goes drastically wrong in your family. Amelia was complaining of pain when walking together, and walking stiffly. I laid her in my lap like a wee babe, and felt her legs, then, with more trepidation, her groin. Sure enough, 8 or 9 new hard lumps on both sides that weren't there the day before.

I was in the middle of loading the dishwasher. Ants were threatening to carry away the children's morning cereal bowls. The cats on the porch yowled for cream. Rosy wanted her hair braided, Caleb a new game on the iPhone, Katy just some time to visit. But I put it all down. All of it. And I went to my bed, and I held my baby girl.


I stroked her hair, her hair that defies description, the multi-faceted gold of it like some kind of miraculous weaving, the stubborn way it curls in the back and is wavy in the front, the flip on each side like a little Dutch girl painting. I stroke her hair and the tears stream down my face.

I cannot face losing that beautiful hair.

And so I picked up my phone and I called a friend while I held my girl - the kind of friend who's been in a well of grief so much deeper than any you've known that she never questions, belittles, or tries to understand your grief. The kind of friend who knows it's you when you can't even stutter out your name because all of your air is being held hostage by the sobbing. The kind of friend who doesn't say it will be fine, or tell you of course it's not cancer. She is just sorry - she doesn't know yet what she's sorry for but for now she's sorry that Amy has lumps and that I am afraid and that is enough. And when we say our goodbyes, she says this is just too much.



And it is. It is just too much. Too much for me, too much for doctors, too much for preachers, and too much for faith. These are the times when Christ holds me, Christ seeks me, Christ comforts me. I am not the active participant in this part of the faith journey, walking with him on the garden paths. I am prostrate on the floor in a puddle of tears and sobs and no words, and He is simply there with me. And He says, too, this is just too much. The only difference is that He adds an ending to that sentence: and so I have overcome.

While I cannot squelch or ignore or decide not to grieve over Amy - Amy's hair, Amy's health, all this fear that we have to grapple with suddenly - I also must remember that there is no loss so deep that He cannot catch her.

I say it again, to reassure myself, that when my faith runs out, His grace will overflow...

There is no loss so deep He cannot catch me.

Please post this blog button all over the internet and rally prayer for my daughter as we face the uncertainty, grief and fear of the coming weeks.


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Rays of hopes, fragments of fear

Amelia saw a doctor today (small miracle). The doctor was thorough, concerned, and helpful. Amelia has two lumps, not one, one about 2 centimeters and one about 1 centimeter, both on the same side of her neck. A wait and see approach was briefly discussed. However, blood work showed a few concerning things - although there is no blatant lymphoma or leukemia signs, for which we are so thankful. It is still possible that the lumps are due to an infection, not cancer.

When a doctor starts a discussion with you with cancer and odds being the first things out of their mouth, terror strikes. Amelia is scheduled to go to Mayo-Rochester for a more complete work-up in their pediatric department there, and potentially a needle biopsy of the lumps if that is warranted. This should take place in the next few days.

So for now, no, she does not have cancer. But yes, she could have it. We are still waiting for more answers. More prayers needed to flood the Throne on behalf of this precious girl. Please keep your prayers coming, and I will do my best to continue to update as we have more news.

God graces me with glimpses of His majesty in these difficult days. A moonscape of epic proportions flowing through blankets of clouds on my sleepless night. A deer bounding full tilt in all her tawny ballerina form through the green field across the way. Caleb chirping, "Mama, there's a BUTTERFLY in the house!" Amelia in her straw cowboy hat charming the medical staff today with her Amy-isms. Yet, the devil cracks the door ever farther open when fear provides an inch for him to slither in - nightmares and flashbacks like I haven't experienced in many months leave me confused and disoriented and seeking for UP and LIGHT. On the grand stage of suffering, I see the battleground clearly, God's army of angels lined up to protect us on one side of the green killing fields, and all the darkness Satan can muster in row after row on the other side. We descend into Narnia, and pray for a glimpse of Aslan as we prepare ourselves for battle.


Please post this blog button all over the internet and rally prayer for my daughter as we face the terror of the coming weeks.


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Please, God, say it's not cancer

It is 1:30 in the morning and I am writing to beg you to pray for my dear, embattled third daughter, Amelia Irene.

It is 1:30 a.m. and worry has my mind whirling. Trials never seem to come to us one at a time. They never seem small, trivial. Our life like living in Africa, long seasons of beautiful sun followed by monsoons that shut all of life down for long periods of time. This week a visit to the cardiologist revealed that I have new complications - a heart murmur, swelling, distention in some of my major veins and arteries. Surgery may be in the near future. A mechanical valve replacement, putting more stress on an organ that has always been my weak point. A long recovery. An uncertain outcome.


But this pales as I cuddle the warm body of my Amelia in bed with me tonight. Her curls like a crown on the crisp sheets in the cool night air. The way she hugs the web of my hand in her fingers. The suckling sounds on her Nuk, reminiscent of our nursing days. A month ago, on May 5th, I noticed a visible lump on her neck. We thought it was a swollen lymph node, gave it a cursory look and feel, and dismissed it from our thoughts. Her health was far from our conscious at the beach in South Carolina. But as the weeks passed, the lump remained, firmer now, fixed, growing larger. She is tired all the time, cold all the time, refuses to eat. The busyness of life should be no excuse for why we haven't had her in to see a doctor yet...but so is life.

Trivial things, like a filling that fell out of one of my teeth. Swelling in my legs that seemed pretty important. A counseling appointment I didn't want to skip because they are so hard to reschedule. T-ball games and coach pitch games and slip and slides. My broken tail bone. A pet dying. A trip for graduation. A friend moving into our house, and the necessary cleaning, reorganizing and welcoming. Homeschooling. Doing the dishes. Scattering Grandpa and Grandma's ashes this weekend, meeting up with family, getting to know new cousins. 

A trip to the splash pad where she huddled in a towel, too cold in the 80 degree heat, begging heat as she shivered close against my sun-warmed body.


A swing by Cedar Lake, where I spent summers as a child. A new straw cowboy hat salvaged from her great-great aunt Charlotte's farm in rural South Dakota.


A creek to clamber through, looking for turtles. Pieces of red granite to pick up. Slogging through "quick sand" mud and adventuring with her brother and sisters.
Why do you see the speck that is in your eye, but do not notice the log that is in your daughters? (Matthew 7:3, altered)
And so it is 1:30 a.m. on a Sunday night, and my mind is racing, making a list of the doctors and surgeons to call, trying to find a way through the medical maze to get to the quickest answer. I'm a nurse - now a doctor of nursing, an odd twist of title that is confusing even to me - and I already know what Google will say. I know that a firm, fixed lump isn't usually a lymph node, or an infection, or a benign tumor. I know it's the hallmark of lymphoma, the third most common type of childhood cancer. I know that the lump, coupled with her symptoms of fatigue, poor appetite, unexplained itching, and weight loss, is a scary, scary thing.

I don't want to be in this place. In this place knowing only God has the answers, only God knows the outcome, and only God can direct our steps as we deal with this crisis in our crisis-ridden third daughter. This daughter, made ever so much more dear to us when we nearly lost her twice just after her 3rd birthday. This daughter whom I feared would die from the seizures at night for a whole year, sleeping with a baby monitor turned up on high and whistling night after night as I trained ears to hear her choking on her vomit. This daughter, who runs into things and hits her head all the time, who runs pell mell through life with greatest joy and so much difficulty. How can I think of approaching the alter again with the child who was delivered to me? How can I walk again with Hannah, begging for my Samuel, and giving my Samuel back to the Lord? How can I climb the mountain with Abraham, with no sacrifice accompanying me but my own child?

I beg for your prayers for my Amelia Irene. I beg You, Yahweh, Jehovah Jireh, my Provider, deliver this child to us again. I pray this is not cancer. I pray she lives a full life to the awesome glory of Moshai', God the Deliverer. Tsa'aq, Jehovah Shammah, the One who is here with us!

Please post this blog button all over the internet and rally prayer for my daughter as we face the terror of the coming weeks.


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Down comes the mallet

I grieve for you, Jonathan my brother;
you were very dear to me.
Your love for me was wonderful...
II Samuel 1:27


No one can heal the hurts and brokenness of life like Jesus can. Pointing out the superficial layers only intensify the alienation and lack of love that is causing the problem in the first place. Grace gets to the root rather than excusing and ignoring the behavior. It’s a tough job being a part of a community that is tied together by love rather than by performance and appearance. Grace always comes at the cost of self-preservation. Live creatively, friends. If someone falls into sin, forgivingly restore him, saving your critical comments for yourself. You might be needing forgiveness before the day’s out. Stoop down and reach out to those who are oppressed. Share their burdens, and so complete Christ’s law. If you think you are too good for that, you are badly deceived. (Galatians 6:1-3) from Grace Is For Sinners by Serena Woods
I love how God's lessons for me fit the seasons. Cancer treatment in the bitter cold and desolation of November. A hot summer full of frazzled brain waves and the storms of seizures for my sweet baby girl. Now a December laden with the silence of snow is full of silence...a phone that's stopped ringing, an empty e-mail in-box and a shrinking list of friends on Facebook along with a shorter than usual stack of Christmas cards. I am on the bitter end of the Christian community and it is eye-opening. I have been here before. It makes me cry out for mercy and beg God for justice and for grace. Revelations 22:20 is wrung from my heart strings and my trembling lips as I hide my breaking heart from my kids in the shower: Come, Lord Jesus, come! 

I learn afresh that the more we are alone in this world, the more we are cast on the God who longs for our friendship...finding new sweetness and fullness in the silent conversations of the heart, the quiet of the days, the stillness that is a home with four walls and your own children. He settles the barren woman in her home as a happy mother of children (Psalm 113:9). I vacillate between peaceful joy in this quietest of Christmas seasons, and heartache and brokenness as I am cast daily onto the Rock. A heart that is beaten is tender though - like the mallet to the steak, every blow breaks down the threads of these heartstrings, and Jesus binds them up in a soft soul beating quietly in His presence once all the tears have been spilled.







Aftermath in the night

Blessed be Your name
On the road marked with suffering
Though there's pain in the offering
Blessed be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say...
Blessed be the name of the Lord

A sleepless night. Caleb ate a tub of orange jello today, after begging for hours for something to put in his empty belly. The jello came out, virtually unchanged, a few hours later after some pretty intense stomach cramps. And it has been followed by three diapers filled with bright red blood. There are not even any clots in the blood - just straight up, liquid blood. I cannot sleep. My dear, sweet baby! I am undone.

I did post a picture of one of the diapers, but I didn't want to gross anyone out, so I buried it earlier in the blog (Heather, this should tell you exactly how much I love you!). Click here if you want to actually see what is shredding my heartstrings tonight.

My soul is in anguish.
How long, O LORD, how long?
Turn, O LORD, and deliver Caleb;
save Caleb because of your unfailing love.
(Psalm 6:3-4)

Finally, His answer comes

Shall I give my firstborn for my transgression,
the fruit of my body for the sin of my soul?
He has told you, O man, what is good;
and what does the Lord require of you
but to do justice, and to love kindness,
and to walk humbly with your God?
(Micah 6:7-8)

I have asked this, sarcastically. I asked God if Theodore was the price for my sins. My many sins. I have sneered at him, in my soul - this God who says He is all-loving, all-powerful, ever-present, merciful, provident, healing, providing; Savior, Deliverer, Shield, Redeemer. Taking my child, the child I never even asked for, planting that child in me, in a place He knew it would die. What is the purpose of that, God? Are you just trying to prove to me that you are, too, just, jealous, righteous, mighty, The Judge? (see The Names of God)

I've sneered, and repented, and sneered again. Cried in brokenness, begged for answers, flailed about in agony, and questioned the foundations of the earth. That is what bringing me to the bottom of my faith looks like. This is where I think the bottom is: this baby, this death, is what I cannot reconcile with my current idea of God: who He is, what He cares about, how He acts, what He loves. Here, at the bottom of my faith, is the only place that God can build me. All the layers above have already been torn down and rebuilt with deeper understanding and trust. Here, at the bottom, is the pain of the wrecking ball as it crashes through my assumptions and ideas - all wrapped up in my humanity, imperfect and fraught with error. Here, He who is gracious, merciful, loving, cares to build me. Has not turned from me or forsaken me - rather, marked off this turf of my soul as a construction zone. GOD AT WORK, the big signs should read. When you see a Christian flailing about in agony, tears flowing from eyes that are normally decidedly dry, this is what it means. GOD AT WORK.

GOD AT WORK sent me here, to the old familiar book of Jonah, the story I learned as a 5 year old, to understand. Now I have a new bottom. I have received an answer for why He would plant that baby in me only to have it wither and die. All the other answers I've pondered seemed trite and ill-fitting: sparing the baby from life under the curse, teaching me about His miraculous power, making me suffer for my past sins. That's not it. This is.

Remember Jonah? Went this way and that avoiding God's "stupid" plan to save Ninevah. Swallowed by a fish (think Pinnochio and Gepetto). Finally obeyed and preached the Gospel to Ninevah. Then got angry with God when God showed mercy and didn't destroy the city after all (making Jonah look like a liar).

Jonah went out of the city and sat to the east of the city and made a booth for himself there. He sat under it in the shade, till he should see what would become of the city. Now the Lord God appointed a plant and made it come up over Jonah, that it might be a shade over his head, to save him from his discomfort. So Jonah was exceedingly glad because of the plant. But when dawn came up the next day, God appointed a worm that attacked the plant, so that it withered. When the sun rose, God appointed a scorching east wind, and the sun beat down on the head of Jonah, so that he was faint.

And Jonah asked if he might die, and said, "It is better for me to die than to live." But God said to Jonah, "Do you do well to be angry for the plant?" And he said, "Yes, I do well to be angry, angry enough to die!" And the Lord said, "You pity the plant, for which you did not labor, nor did you make it grow, which came into being in a night, and perished in a night. And should I not pity Nineveh, that great city, in which there are more than 120,000 people who do not know their right hand from their left, and also much cattle?"

I "pitied the plant" - my baby, Theodore, for whom I did not labor, nor did I make it grow, which came into being in a night and perished in a night. God was showing me a spirit of mercy and pity. He was showing me how He feels. Who is He teaching me to pity instead of despise? Help instead of laugh at in their (consequential) distress? Who do I think I am better than - that God wants me to help, to love, instead?? Why do I despise people, and why did it take the death of child to teach me this? Was that really necessary God? Was the scorching east wind and beating sun really necessary?

He has a purpose for each of us. Really, wouldn't it be better, in a way, if we all went straight to be with Jesus like Theodore? This baby I lost - he will never flail about in agony, or have questions without answers, or lose, or suffer. His purpose, his reason for being created, wasn't the same as mine. I ache deeper today knowing perhaps his purpose was to teach me something. I wish I had already learned that lesson so that I could hold him instead of learning from him. But I cannot truly lament where he is now. I lament for my suffering, not for his. My purpose is, apparently, to suffer. God will use my suffering for something just as he is using Theodore's lack of suffering to teach me.

Yes, that's how hard the lesson has to hurt. I am stubborn. I don't learn when I sit under a cloudy sky in comfort, watching the city and waiting for it's destruction, when I'm cool. I am the scoffer - the one who sees the decisions people make and waits for the consequences to beset them. I don't want to be the scoffer anymore. I want to be the woman who see the decisions people make and waits to see God's hand of mercy. Prays for God's hand of mercy. I want to be the feet that deliver God's hand of mercy.

Lord Jesus, Father in heaven, You have dealt so kindly with me. Thank you for sparing me the death of Amelia. Thank you for the less painful loss of a baby I never held or nursed or knew. Thank you for teaching. Thank you for caring enough to appoint plants in my life, thank you for being brave enough to risk our relationship, sending me to the brink to question you and everything you have placed in my life, thank you for worms and east winds. You are good. You are God. I am so weak and ignorant. I praise you for making something of me, for destroying the bottom of my faith again and making the pool that is Your love ever deeper and wider through these trials and wrestling sessions. You are an awesome God. I will never, ever understand the depth of you, God. Thank you for this glimpse. Help me use it for your glory. Thank you for turning my tears of pain and anguish and anger into tears of joy and humility and understanding. You are merciful, God. I love you and I want to serve you. Thank you for letting me even though I suck at it.

He became sin
Who knew no sin
That we might become His Righteousness
He humbled himself and carried the cross

Love so amazing
Love so amazing

Jesus Messiah
Name above all names
Blessed Redeemer
Emmanuel
The rescue for sinners
The ransom from Heaven
Jesus Messiah
Lord of all

All our hope is in You
All our hope is in You
All the glory to You, God
The light of the world
~ Jesus Messiah, Chris Tomlin

Why not?

Elisabeth Elliot wrote this as a reflection on suffering after speaking to a young mother with terminal cancer:
When we cry "Why, Lord?" we should ask instead, "Why not, Lord? Shall I not follow my Master in suffering as in everything else?"

Does our faith depend on having every prayer answered as we think it should be answered, or does it rest rather on the character of a sovereign Lord? We can't really tell, can we, until we're in real trouble.

I never heard more from the young woman. I neglected to ask her address. But I prayed for her, asking God to enable her to show the world what genuine faith is--the kind of faith that overcomes the world because it trusts and obeys, no matter what the circumstances. The world does not want to be told. The world must be shown. Isn't that part of the answer to the great question of why Christians suffer?

As I plead daily for a solution to my current crisis, I also embrace the fact that I may be called to suffer this ab hinc. Cognitively speaking, I grasp the principle Elisabeth Elliot refers to above, that the question really is, "Why NOT suffer?" Spiritually, emotionally, though, I struggle with that. I struggle to justify the host of verses that state I will be blessed if I follow Christ with the host of verses that state I will be persecuted with suffering if I follow Christ! There are so many issues like that in the Bible. I tire of the academic attempts for deeper understanding that I frequently endeavor to make. I remember thinking, as a child studying the Word, that heaven will bring the answers and it is silly to ask them while here on earth. I think I am going to return to that philosophy, at least for the moment. Lay the questions aside for the simple act of faith. I don't know (does anyone?). I trust instead.

Making me understand

"He made me understand, speaking with me and saying, "O Daniel, I have now come out to give you insight and understanding. At the beginning of your pleas for mercy, a word went out, and I have come to tell it to you, for you are greatly loved..." ~ Daniel 9:22-23

Just think! At the beginning of this trial, at the beginning of last April, a year ago, a word went out: "Yes, I will cure Genevieve's cancer. She will have a clean scan next March." I walked through a fog of humanness all year long. A year of growth, and pleading, and laying myself down. But at the beginning of my pleas for mercy, a word went out, for I am greatly loved. I need to remember this, deep inside of myself: the word has already gone out. I plead with my Savior, yes. That is the element of action in free will that He desires from me. Yet He has known each hair on my head intimately since before I was conceived. He sees now all the way through to the end of my days here, and His glorious reunion with His child in heaven.

But I would not give you false hope
On this strange and mournful day
When the mother and child reunion
Is only a motion away,
Oh, oh the mother and child reunion
Is only a motion away
Oh the mother and child reu-nion
Is only a moment away
~ Paul Simon, Mother & Child Reunion

Pearls

The way of mercy
Takes me to the least
Down the road of suffering
To the wedding feast

For I know that You are faithful
As we walk these fields of white
To the weary and the hurting
let Your Kingdom comes
~Faithful, David Ruis

Prayers are always answered. Yesterday was a glorious day, a string of pearls unfolding before my very eyes as I opened gift after gift streaming straight from the hands of the Father into my bruised heart. Just when I thought I was at the end of the necklace, another bead glistened in the warm, Indian summer sun. The morning began with waiting...but not for the radioactive treatment, rather the glorious arrival of my newest niece or nephew! Megan was admitted to the hospital Sunday night, and I couldn't believe God was granting my prayer that I be able to hold their little one before I was quarantined! I called early in the morning to see about delaying my treatment, and was told I could come anytime before 4:30 p.m. Another pearl: a beautiful, sunlit day to treasure my children, share life with them, breathe in their sights, and sounds, and smells. Fill my cup up to overflowing so I can spill some drops of joy into my barren lap on a darker day in the November that will surely come.

We went to music class and delighted together in the cacophony and chaos that is kids and music and dancing in a high-ceiling art gallery lit with eastern windows and glistening pine floors. We gloried in Kosher salt at a local deli and beautiful, crumbly goat cheese that a low-iodine Mama can feast upon. We napped together in the lazy, beetle-buzzing afternoon in the unexpected bliss of open windows and the sound of corn husks rustling in the warm, summer-like breeze. I packed my car slowly, savoring every quiet moment of the house God has given us, listening to the children sleep and staving off sorrows that threatened at every moment. Still waiting for the call announcing the birth of that beautiful babe...

Late afternoon came, and no baby. Confounding! The day was a gift just for me...brought about by the "impending birth", which didn't happen. A glorious, free day that I wasn't expecting. A drive back into the reality of the city with the children bursting at the seams from our joyous, momentous, and totally ordinary afternoon. Hugs, hugs, more hugs, holding tears in with iron bands of will as I smiled and hugged some more. Swallowing the largest lump my throat has ever known...swallowing it a hundred times, tasting it's salty bitterness, and thanking God for my afternoon of pearls. One hundred times easier to swallow the large blue horse-pill of radioactive iodine. Primed with grief and disbelief, my throat found that an easy job. Sitting in a sterile little room with my husband beside me, I stared down into a little lead canister, took out the glass vial, unscrewed the cap and tipped it back to accept this cure that threatens to be worse than the disease that now invisibly ails me. The ache of forgetting a good-bye kiss before the poison passed my lips. Walking away carefully observing the "3 foot rule". Feeling the world open up like a chasm before me.

That longed-for freedom...that abyss of unlimited choice...the silence as the "fetters" of motherhood and wifery dropped from my ankles and wrists and shattered around my feet. How shall I now live? Adrift once again in a sea of strangers. Floating along in the tide and whim of self. What moors me? What steers me?

Underneath, there He is. His heart beat still propels me. My joy is still in Him. What a pearl to discover, that after all this time, and all these externally imposed guides and rigorous boundaries, I have continued to internalize the lessons He is teaching, to integrate them as part of my self and what propels me and gives me meaning. I am not adrift. My ways and means have shifted, and my purpose is the same. In this, as in all else, I am here for His glory. I exist for His service. I pray for His guiding hand. I long for His touch.

Waking this morning, the world is tasteless and odorless. The world is magically sterile, and glitters with new sparkle through my eyes, swollen and skewed from the localized effects of the radiation. There is a philosophical lack of focus, an attendant lack of agenda and timeframe; and a physical reality, an inability to perceive the visual all around me. Words and worlds are as hazy as time and duty are.

Pearls of sleep, and friendship, and deep, uninterrupted drinking at the Well of meaning and Truth. I curl up by the Well for a good long rest after five years of many thirsty moments.

That is what it's like to leave your life, your home, your job; everything behind you, it feels. Everything in front of you different and intimidating and wonderful all at once. For me that has been 24 hours of radioactive cancer treatment. Now, only 456 hours to go...