Showing posts with label prayer request. Show all posts
Showing posts with label prayer request. Show all posts

When peace is a distant memory

Photo by Ann Voskamp
Sometimes I wonder, if this is how love feels, what would His anger feel like? Life seems an insurmountable pile of trials thrown together like dirty laundry, and you will never complete it all. If suffering is to be our food for the rest of life, are we willing? Oh, to skip back to the naïveté of childhood, before I realized the weight of this life.

How do you roll the crushing boulder off your broken frame? What could possibly give me leverage in this mire? I keep counting blessings, as if to make a rope ladder up from the pit out of these gifts numbered. But it is slogging work, to push away the dross of each day to hunt for the few jewels. Life is hard, times are bad, and it seems too much to bear.

Guilt piles up heavy as well. Every time the dark thoughts collide inside, more wounds are created, in me, in these children, in my husband who so tenderly supports and comforts me. How can I keep doing this to the ones I love? If it were up to self-control, if I could fix these broken places myself, I would have, a thousand times over. The problem is, I can only rely on the One stronger than I to heal me, and instinct makes me push Him away, as He seems, too, the source of my pain. By His allowing it feels as though He gives His consent. How can He not rise as my shield and make the sun shine upon my soul for a season? Does He really think I am strong enough to survive all of this?

Today I am to be at a women's conference, but I cannot drive, I cannot think, and I cannot be in a group of women - anathema to an introvert's bleeding heart. It would be like walking back into the fire the day you get out of the hospital with your old burns still weeping. I cannot make myself participate.

Oh, how I beg for deliverance.

Grace.

Peace.

Healing.

When will my Lord hear and comfort me?
Plead my cause, O Lord, with them that strive with me: fight against them that fight against me. Take hold of shield and buckler, and stand up for mine help. Draw out also the spear, and stop the way against them that persecute me: say unto my soul, I am thy salvation. (Psalm 35:1-3)



Space to breathe

My husband, wonderful husband, has given me a break. Time to breathe. To rediscover. To push tentacles into the Solid Rock. Would you be in prayer for me, my friends? That I would find that spirit of peace HE promises, that I would be impenetrable to the lies of the evil one, that I would heal and grow and come back home more whole?


Today I am in North Dakota with one of the wisest and sweetest 20 year olds I've known. I've cared for her since her infancy, and now she shrouds me with her grace, her embrace, her understanding. Tomorrow, another day here in the drifts. Next week, peace at her mother's farm. I leave house and hearth and husband and children to seek that peace the Savior offers. To refuse other gods, those gods of anxiety and pain and wishing for an end to suffering and an end to hurting those I love. Pray, oh, pray. I am in desperate need of that Grace I whispered "yes" to at 4 years old, the undeserved favor, the sweetness of the all-forgiving Christ love.

Pray it would surround me, bathe me, heal those ancient wounds with the washing of the Living Water and the blood shed for me.

Humbly I come before the Throne, and humbly I come to you, broken, asking that I  might see and believe and take hold to Redemption.


What I forgot to ask for this Christmas


It pays to open up your heart just a crack. Christmas knocks, and you can open up and let the spirit in or ignore that something that really matters is at the door. My heart was raw this year and not ready to be knocked on. But something made me go to the door. And what I found in the cold winter air outside that door was balm. Balm for the hurting soul. Balm for the discouraged. Balm for the weary. Children laughing. Friendships forming before my very eyes. I want to shut my eyes. I don't want to see. Because I am grown-up and I know that pain follows pleasure sometimes. The post-holiday doldrums might side-swipe you if you open your heart up even a crack for Christmas. For joy. For beauty.


But I watch these people, these people who are living out Christmas, who are living out their calling. They are doing it right among my children. Can I really stop seeing, blindfold myself to these people, just because other people have smiled like this, have lived out Christ with me, have lived out their calling for my children, for me, and then walked away without a word? How do you drop your guard when it's a shield permanently affixed on your heart, riveted there by fear and pain?

Grace. It floods in the cracked door. It rips off the blindfold. It pierces a little hole in the shield riveted there on my heart. Because Christmas...it's the baby born. It's hope reborn. It's redemption, which means beauty from ashes, repurchase of the damaged goods. And if I can be redeemed, then relationships can be, too. These people could be my people. 


I look at my 7 year old daughter's Christmas list. She wants a box of bandaids. Some new pants. A note pad. But she also wants a Kindle HD. My Christmas list is the box of bandaids, the new pants, the note pad. I didn't write down the Kindle HD. Because for a minute I forgot to believe in big Grace. I don't want to ask for the impossible, the improbable, the difficult. I just ask for the littlest things I need. The bandaid for the broken heart. The clothes for my battered body. The note pad on which to scribble down gifts through tears to try and drag my sinking ship out of the dark waters of the past.

But what I really want, really need, is the Kindle. The unexpected, the impossible, the expensive Grace.  Put back together this broken heart. Teach me to trust again. Not just You, Lord. People. Help me trust people. That's what's really at the top of my list. It's almost the end of the year. Year two of the guarded me. Can you help me drop my guard, loosen this shield over my heart, heal me in 2013?

Breathless

I apologize for the lapse here on the blog. The last few days have seen my descent into a new and difficult health trial and I've been simply treading water in bed. I had a blast helping out with games at the kids' vacation Bible school this Sunday and Monday, but with a bad cold already on board, and just off the heels of a double pneumonia late in June/early July, I knew I would pay for the extra energy expenditure! What I didn't know was exactly how much! While, last night finally saw me back in the ER looking for help breathing, as I had been coughing and gasping almost non-stop for 24 hours and the oral meds given me by my doctor to treat an amazingly horrific case of bronchitis were not helping. After some new-to-me nebulizer breathing treatments and a shot of IV steroids, I was feeling well enough to head home. This morning I am facing a whole host of new medications to juggle to keep my breathing normal, all on my daughter's 9th birthday. Add to this the fact that both my grandmother and mother struggled with debilitating and life-changing asthma for much (or all) of their adult lives - I am a weepy, exhausted mess! I am repeating one of my favorite verses in times like these - "what time I am afraid, I will trust in Thee" (Psalm 56:3) - each and every time the emotion drowns me on the spot. I can do little about the tsunami of emotions - especially on the heavy-duty emotional rollercoaster cocktail of steroids and nebulizer treatments! - but I can change my attitude and take on a posture of dependence on God, who knows all my tomorrows and has laid out the perfect plan if only I have the courage to step into it.


What the landscape looks like in black night - even lit by the presence of Christ as we navigate the fog - may change drastically when the morning comes again. I took these nearly identical photos one foggy 24 hours last week - one during the darkness of night under a full moon, and one around 5 a.m. as the dawn was just wrapping it's violet fingers around our side of the world. How much less sinister the world looks when we have walked through the dark tunnel to the other side!


I was also brought encouragement from a short devotional circulated the first day of VBS - more reassurance that this new church has a different and healthy grasp on the role of suffering in the life of the Christian. I share it here as I have spent the little energy I had for typing. If you get the chance, please once again lift my health up for prayer. It will be a difficult few weeks clawing out of the poor state my lung health has declined to, and probably a few months of vigorous rehab and treatment to get me back to baseline.


Session 1: I Am with You
God is with Shadrach, Meshach, and Abednego.
Daniel 3:1, 4-28

What do you believe about God when everything’s going your way? How about when you’re in the midst of life’s worst-case scenarios? When a job is lost, dreams are shattered, or severe illness strikes, maybe you believe God is right there with you. Or maybe you think God has deserted you.

Look again at how Shadrach, Meshach, and Abednego responded to a potentially life-ending worst-case scenario and you’ll discover what they believed about God. These three young men took a stand for God that would potentially end their lives. Shadrach, Meshach, and Abednego knew that God was able to save them, but they also realized that He might not choose to. Whatever the outcome, they knew God was with them.

Although we know God can do anything, the Bible never promises us an escape hatch from trouble. While you may feel abandoned by God while going through the depths of suffering and loss, the truth is, you can have confidence in God’s promise—He is with you before, during, and after any trouble that comes your way.

Please pray for my son Caleb


My 4 year old son Caleb had a really rough day yesterday. He had a serious head injury in the afternoon, running full tilt with his eyes closed into a large steel pole at a splash pad and knocking himself out. Later in the afternoon, he stepped on a very old (as in 1930's) rusty roofing nail, about 1 1/2" long, which went through his Croc and half way through his foot. It seems to have slid right along the ankle bone without piercing it, according to x-rays in the ER, which we were thrilled with, as it eliminated the immediate need for surgery on his foot. Because of Amy's vaccine-related encephalitis, Caleb is not immunized and can't be until we get more answers about whether the vaccine reaction is hereditary and shared by our other children. Caleb received tetanus immune globulin instead of a standard vaccine, which has a lower chance of side effects. However, today he is turning blue off and on, and his foot looks angry and red, swollen and sore. We are headed back to the ER shortly with him for more treatment of what may be either a reaction to the shot they gave him, or an infection in the puncture wound in his foot. We would really appreciate your prayers for his healing and safety.



A little shock

Just a note to ask for prayer. I was admitted to St. Cloud Hospital last night through the the ER after fainting multiple times. I went into shock, and experienced a severe drop in blood pressure. I had just been restarted on a medication for PTSD - Minipress (prazosin) - and even though I only took half the prescribed dose, it had the side effect of drastically lowering my blood pressure. If I had not followed my gut and had taken the whole dose, I would be in the ICU or dead right now. God is gracious! The medication is out of my system now and I am finishing up getting some more oxygen and IV fluids, then I should be heading back to my in-laws. I feel very run down and kind of dull mentally, probably from the physical shock. I just need some rest - and never to take Minipress again! - and I should be soon back to normal. Thanks in advance for your prayers!

Amy with the twin kittens the other day

Update on Amelia


Amy went back to Mayo yesterday to see the oncologist (cancer doctor). The news was not good. I think I am in denial, or my heart is too heavy to process the emotions I'm having. Amelia's lump is harder, with more defined borders. Last week it was described as rubbery, more consistent with a "regular" swollen lymph node. This week it feels like a cancerous lymph node. The doctor said she thinks there is now about a 50% chance Amy has lymphoma. She wants Amy to finish out her course of antibiotics just in case it makes a difference. She also said there is still a small chance it is a viral infection, and is hoping the immune doctor we see on Friday will give us some other explanation. Amy is scheduled for surgery to remove several lymph nodes on the right side of her neck on June 29th. On June 28th, she will meet again with the oncology doctor, this time a team of doctors who will outline a possible course of treatment, and she will also meet with a surgical team who will come up with the best plan for her surgery, since she has had a notoriously difficult time with anesthesia in the past because of her brain abnormalities after her brain infection and brain damage in 2009.

The doctors expect to be able to perform the surgery using a drug that Amy has done well with in the past, Propofol. They are hoping to use a small incision about a 1/4 inch long, and use a vacuum tool to extract the numerous lymph nodes through the small incision. Then the lymph nodes will be frozen and examined by an oncology pathologist who will give us a definite diagnosis about lymphoma. Meanwhile, Amy's recovery should be fairly easy. The only complications they foresee is her response to the anesthetic. It will take up to a week to get the results back about whether or not it is cancer.

Meanwhile, Amy seems to be getting worse with each passing day. On Sunday, she attended church in her winter hat, an owl hat we bought her for Christmas, that garnered a lot of compliments and some funny looks. She is dressing in winter clothes because she is so cold, despite temperatures in the 80s. A woman at church knit her a prayer shawl, which she wears around the house and has been very thankful for because of the added warmth. She has four blankets on her bed at night and wears fleece footy pajamas and a winter hat, but still comes to our bed shivering with cold and begs for our down comforter. During the day, she takes multiple breaks for naps in my bed and sits on the porch on the swing while the other kids play. All of this is very uncharacteristic for the most active of our four children. She is obviously sick with something. We just don't know what yet. Trying not to borrow worry from tomorrow per the verse sufficient unto each day are the trials thereof (Matthew 6:34), we accept her latest quirks as added cuteness from an already quirky and enigmatic little girl who regularly charms us with her antics.

A quick look into lymphoma gives me a little more hope. It is likely that, if this is what Amy has, it is non-Hodgkin's lymphoma, because of her age. It also probably the aggressive form, because so far it looks like her bone marrow, liver and spleen are not involved even though she already has symptoms of lymph node enlargement (yeah!). The 5 year survival rate for this type of lymphoma is 63% and the 10 year survival rate is 51%. That is very similar to odds I was given for my cancer and it looks like I will be beating the 5 year odds.

We need your prayers, oh, we need your prayers. This is so overwhelming for Aaron and I. We both have had days of deep depression, so deep we are weeping for help from the Lord. As former pediatric bone marrow transplant nurses, we can list off dozens of favorite lymphoma patients, most of whom are dead, and this adds to the weight of our current situation. Even the doctors acknowledge this when I tell them about our background. They know that this adds to our anxiety - and at the same time makes us more knowledgeable. Please continue to lift up Amy's health - but also our whole family and the emotional ups and downs of this new journey we are on together as a family as we wait for surgery and diagnosis.


Please post this blog button all over the internet and rally prayer for my daughter as we face the uncertainty, grief and fear of the coming weeks.


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When things are just too much

A thundercloud mounts a towering anvil of peach grandeur against the backdrop of the torrents of gray rain falling on one side of the horizon and the pink sun just kissing the hilltops on the other. We are driving home from a baseball game, rag dolls bouncing along in the humid air with OneRepublic blaring from the iPhone to keep Amy content. 

The kids and I cleaned house today, trying to progress ever closer to our goal of organized and simple (and mostly failing dismally). We basked in the hot sun together. Smelled wildflowers. Cuddled kittens. 

Being in grieving, for any reason, is like walking on a road full of mud puddles. If the road were dry, you'd spot every pot hole. But with standing water everywhere, it looks deceptively flat. You're so excited to go dance in the puddles, and you never know when one will take you by surprise and land you on your butt in the mud because it is deeper than it looks.


And so the alien landscape that you find yourself suddenly plunged into when something goes drastically wrong in your family. Amelia was complaining of pain when walking together, and walking stiffly. I laid her in my lap like a wee babe, and felt her legs, then, with more trepidation, her groin. Sure enough, 8 or 9 new hard lumps on both sides that weren't there the day before.

I was in the middle of loading the dishwasher. Ants were threatening to carry away the children's morning cereal bowls. The cats on the porch yowled for cream. Rosy wanted her hair braided, Caleb a new game on the iPhone, Katy just some time to visit. But I put it all down. All of it. And I went to my bed, and I held my baby girl.


I stroked her hair, her hair that defies description, the multi-faceted gold of it like some kind of miraculous weaving, the stubborn way it curls in the back and is wavy in the front, the flip on each side like a little Dutch girl painting. I stroke her hair and the tears stream down my face.

I cannot face losing that beautiful hair.

And so I picked up my phone and I called a friend while I held my girl - the kind of friend who's been in a well of grief so much deeper than any you've known that she never questions, belittles, or tries to understand your grief. The kind of friend who knows it's you when you can't even stutter out your name because all of your air is being held hostage by the sobbing. The kind of friend who doesn't say it will be fine, or tell you of course it's not cancer. She is just sorry - she doesn't know yet what she's sorry for but for now she's sorry that Amy has lumps and that I am afraid and that is enough. And when we say our goodbyes, she says this is just too much.



And it is. It is just too much. Too much for me, too much for doctors, too much for preachers, and too much for faith. These are the times when Christ holds me, Christ seeks me, Christ comforts me. I am not the active participant in this part of the faith journey, walking with him on the garden paths. I am prostrate on the floor in a puddle of tears and sobs and no words, and He is simply there with me. And He says, too, this is just too much. The only difference is that He adds an ending to that sentence: and so I have overcome.

While I cannot squelch or ignore or decide not to grieve over Amy - Amy's hair, Amy's health, all this fear that we have to grapple with suddenly - I also must remember that there is no loss so deep that He cannot catch her.

I say it again, to reassure myself, that when my faith runs out, His grace will overflow...

There is no loss so deep He cannot catch me.

Please post this blog button all over the internet and rally prayer for my daughter as we face the uncertainty, grief and fear of the coming weeks.


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Rays of hopes, fragments of fear

Amelia saw a doctor today (small miracle). The doctor was thorough, concerned, and helpful. Amelia has two lumps, not one, one about 2 centimeters and one about 1 centimeter, both on the same side of her neck. A wait and see approach was briefly discussed. However, blood work showed a few concerning things - although there is no blatant lymphoma or leukemia signs, for which we are so thankful. It is still possible that the lumps are due to an infection, not cancer.

When a doctor starts a discussion with you with cancer and odds being the first things out of their mouth, terror strikes. Amelia is scheduled to go to Mayo-Rochester for a more complete work-up in their pediatric department there, and potentially a needle biopsy of the lumps if that is warranted. This should take place in the next few days.

So for now, no, she does not have cancer. But yes, she could have it. We are still waiting for more answers. More prayers needed to flood the Throne on behalf of this precious girl. Please keep your prayers coming, and I will do my best to continue to update as we have more news.

God graces me with glimpses of His majesty in these difficult days. A moonscape of epic proportions flowing through blankets of clouds on my sleepless night. A deer bounding full tilt in all her tawny ballerina form through the green field across the way. Caleb chirping, "Mama, there's a BUTTERFLY in the house!" Amelia in her straw cowboy hat charming the medical staff today with her Amy-isms. Yet, the devil cracks the door ever farther open when fear provides an inch for him to slither in - nightmares and flashbacks like I haven't experienced in many months leave me confused and disoriented and seeking for UP and LIGHT. On the grand stage of suffering, I see the battleground clearly, God's army of angels lined up to protect us on one side of the green killing fields, and all the darkness Satan can muster in row after row on the other side. We descend into Narnia, and pray for a glimpse of Aslan as we prepare ourselves for battle.


Please post this blog button all over the internet and rally prayer for my daughter as we face the terror of the coming weeks.


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Please, God, say it's not cancer

It is 1:30 in the morning and I am writing to beg you to pray for my dear, embattled third daughter, Amelia Irene.

It is 1:30 a.m. and worry has my mind whirling. Trials never seem to come to us one at a time. They never seem small, trivial. Our life like living in Africa, long seasons of beautiful sun followed by monsoons that shut all of life down for long periods of time. This week a visit to the cardiologist revealed that I have new complications - a heart murmur, swelling, distention in some of my major veins and arteries. Surgery may be in the near future. A mechanical valve replacement, putting more stress on an organ that has always been my weak point. A long recovery. An uncertain outcome.


But this pales as I cuddle the warm body of my Amelia in bed with me tonight. Her curls like a crown on the crisp sheets in the cool night air. The way she hugs the web of my hand in her fingers. The suckling sounds on her Nuk, reminiscent of our nursing days. A month ago, on May 5th, I noticed a visible lump on her neck. We thought it was a swollen lymph node, gave it a cursory look and feel, and dismissed it from our thoughts. Her health was far from our conscious at the beach in South Carolina. But as the weeks passed, the lump remained, firmer now, fixed, growing larger. She is tired all the time, cold all the time, refuses to eat. The busyness of life should be no excuse for why we haven't had her in to see a doctor yet...but so is life.

Trivial things, like a filling that fell out of one of my teeth. Swelling in my legs that seemed pretty important. A counseling appointment I didn't want to skip because they are so hard to reschedule. T-ball games and coach pitch games and slip and slides. My broken tail bone. A pet dying. A trip for graduation. A friend moving into our house, and the necessary cleaning, reorganizing and welcoming. Homeschooling. Doing the dishes. Scattering Grandpa and Grandma's ashes this weekend, meeting up with family, getting to know new cousins. 

A trip to the splash pad where she huddled in a towel, too cold in the 80 degree heat, begging heat as she shivered close against my sun-warmed body.


A swing by Cedar Lake, where I spent summers as a child. A new straw cowboy hat salvaged from her great-great aunt Charlotte's farm in rural South Dakota.


A creek to clamber through, looking for turtles. Pieces of red granite to pick up. Slogging through "quick sand" mud and adventuring with her brother and sisters.
Why do you see the speck that is in your eye, but do not notice the log that is in your daughters? (Matthew 7:3, altered)
And so it is 1:30 a.m. on a Sunday night, and my mind is racing, making a list of the doctors and surgeons to call, trying to find a way through the medical maze to get to the quickest answer. I'm a nurse - now a doctor of nursing, an odd twist of title that is confusing even to me - and I already know what Google will say. I know that a firm, fixed lump isn't usually a lymph node, or an infection, or a benign tumor. I know it's the hallmark of lymphoma, the third most common type of childhood cancer. I know that the lump, coupled with her symptoms of fatigue, poor appetite, unexplained itching, and weight loss, is a scary, scary thing.

I don't want to be in this place. In this place knowing only God has the answers, only God knows the outcome, and only God can direct our steps as we deal with this crisis in our crisis-ridden third daughter. This daughter, made ever so much more dear to us when we nearly lost her twice just after her 3rd birthday. This daughter whom I feared would die from the seizures at night for a whole year, sleeping with a baby monitor turned up on high and whistling night after night as I trained ears to hear her choking on her vomit. This daughter, who runs into things and hits her head all the time, who runs pell mell through life with greatest joy and so much difficulty. How can I think of approaching the alter again with the child who was delivered to me? How can I walk again with Hannah, begging for my Samuel, and giving my Samuel back to the Lord? How can I climb the mountain with Abraham, with no sacrifice accompanying me but my own child?

I beg for your prayers for my Amelia Irene. I beg You, Yahweh, Jehovah Jireh, my Provider, deliver this child to us again. I pray this is not cancer. I pray she lives a full life to the awesome glory of Moshai', God the Deliverer. Tsa'aq, Jehovah Shammah, the One who is here with us!

Please post this blog button all over the internet and rally prayer for my daughter as we face the terror of the coming weeks.


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Interviews


One full day of interviews done - today, another full day from 8:30 a.m. until after dinner! If you would offer up a prayer for strength, I would appreciate it! Who knew interviewing for a professorship was so exhausting??

A set-back


I just arrived home from a 4-day stay at the hospital for continued treatment of depression and other mental health issues. I am feeling better than I was Tuesday, when I was admitted. I would appreciate prayers for the coming week and a half with my family prior to my next separation from them for a cancer scan on January 18. Thank you, dear friends!

Weekends are for announcing


After the fiasco with two previous job opportunities, I haven't mentioned here that I was offered and accepted a position as a nurse in the critical care unit at the local hospital. I start tomorrow, and will work full-time for 8 weeks for a thorough re-orientation to the tasks. My kids will be spending my work days with Grandma, an experienced homeschool teacher who will keep them right on track the 3 days a week I am gone.

To complicate matters, I came down with both strep throat and influenza A this weekend. I am on medication so will be able to start as planned, but I feel like a truck hit me. Prayers for quick healing would be greatly appreciated!

Another side note...congratulations to my brother-in-law, who is now engaged!

Safe in the arms of love


We got lost again
Drove to the end of a road
And a red faced man
Told us to do what we're told
And on the 23rd night
Things ain't bad but things ain't right

Are we falling or flying
Are we falling or flying
Are we living or dying

The air's so heavy
It could drown a butterfly
If it flew too high
And on the 35th morning
Things ain't good but things ain't boring

Are we falling or flying
Are we falling or flying
Are we living or dying

Sometimes it's hard to tell
If there's a life behind a song
But i know tomorrow
Today won't feel so long
Cause on the 42nd night
The room was dark but the stage was bright

Are we falling or flying
Are we falling or flying
Are we living or dying
Cause my friend this too shall pass
So play every show like it's your last
~excerpted from "Flying or Falling", by - you guessed it - Grace Potter!~


It's been a long day. I could make a "pros and cons" list of the day, and I would come out thinking it was a great day. But for some reason, it was heavy. Heavy on my mind, my heart. I get ready to face some things I'm not ready to face. And I wonder, if I'm falling or flying. Living or dying. I know I'm dying...I know I'm living, like never before, as I walk these particular steps on the winding path to my grave. Pain from all directions, and joy flowing in through the cracks.


I can't spell it out...but I need your prayers.
Pray I'll be flying - on eagle's wings, by His power. 

Note to heaven: I need help!


I traveled this weekend, to the funeral of a dear great-aunt who lit the world with her kindness and housed me for many halcyon childhood nights in her rambling farmhouse in a field on the flats of the White Earth Indian Reservation. Her sons bent to scoop the mound of dirt onto her urn with their hands, loving her so much they didn't even use the spade to scrape the dirt back over what remained of her gentle and beautiful body.


And in the pale yellow light of early afternoon, a trouble brewing deep in my body for weeks blossomed and felled me to my knees in a church bathroom. I fainted several times, grew gray, heart aching and throbbing and that horrible sense of dread rising like a lump in the throat. I guess I was out of it enough, gray enough, to cause many relatives concern...which makes me feel so sorry. In short, I was rushed to the ER in a rural Minnesota town, where they noted changes in my heart rhythm and lab tests that led them to transport me via ambulance to a much larger hospital in Fargo, North Dakota. There they found a problem with the settings on my pacemaker, which has caused it to fire over 250 times in the last 3 days alone. This error in the settings also caused some dangerous rhythm problems that were causing my heart to lose blood flow (causing the chest pain) and my brain as well (causing the fainting).


With the settings changed, I felt somewhat better. I am extremely exhausted, deep down to my bones. That event opened up the tap on my energy source and drained me deep. The slightest exertion, and the chest pain comes roaring back with a vengeance, my vision goes dim, the world hazy. I honestly do not know how I will survive the next few weeks.

Amelia has 10 hours of testing and appointments today at Mayo Clinic.I will have several follow-up appointments and possibly even surgery to investigate the ongoing pacemaker problems as this week progresses. Next week, Amelia will be hospitalized for 3 days (the 11th, 12th and 13th) at Mayo-St. Mary's Hospital for very necessary monitoring of her life-threatening epilepsy. Nothing on this busy calendar is "optional".

I don't write this to be depressing. Or to wallow in self-pity. In fact, it is very hard even to report these events. My instinct is to crawl in a hole until I either a) get better, or b) die quietly, peacefully, and without bothering anyone else. However, there is only one way I will survive the next two weeks. I need power from a richer source than my own body. Will you join me in begging the God who says that through Him, all things are possible, for the strength needed to navigate this busy season of suffering once again? (Matthew 19:26)

Abraham leaned on this impossible power of God and received a son as a graying old man (Genesis 18:24).

Job, in the depths of trials much larger than mine, leaned on this truth. (Job 42:2)

God said it again, when the entire nation of His chosen people turned from Him and sinned in hideous ways. He said it, promising to bring them back and build them up again (Jeremiah 32:27).

Surely the Creator of the universe, the life-breather and Ruler of heaven, the author and finisher of my faith...surely He has strength enough for a few long days at a clinic and a surgery and the tasks that loom all around my house. Please lift me up in prayer. I need to be hooked up directly to the power He alone can give!



::
Photos from the yellowest sunset on a bitter cold October evening at the York's hilltop ranch in Pepin County.

Cityscapes



The blur of the Twins baseball game melted quickly into the blur on St. Anthony Main, next to the river near downtown Minneapolis.  It was our first date in months.  Even though it was loud, humid, and crowded, both the game and the walk felt like pulling on a comfortable old coat.  As life approaches the speed of light, and all the worlds I'm juggling collide - school, homeschooling, health events, homemaking, and freelance authorship, not to mention friendships, church, family, and applying for jobs - it was good to remember the bedrock of marriage that undergirds everything.


Once again I was reminded how still this man I married is.  The camera shutter stayed open for a full four seconds when taking this photo, and he isn't even blurred.  He stands like a quiet sentinel in the foreground of everything, watching over me and strengthening me and encouraging me.  Still.  Serene.  Sometimes unreadable.  But always there for me.


We watched a man fishing below the dam, and dreamt of days when life slows down and such recreation fits in again.  Not just a snatched afternoon - but a whole weekend perhaps?  With money to repair the boat (that has to wait until the cars are taken care of) and time to burn.  Sometimes it seems like the impossible dream.


Every day but one this week, there is a doctor's appointment.  That one day will be filled with work, and then Friday I defend my comprehensive exam (assuming the 3rd and final member of my committee does not throw a kink into my passing).  This week, I have to save my brain for school.  Luckily, I have a whole backlog of photos that are just waiting to be posted.  And creative writing is therapeutic.  I'll sneak a few words in with the pictures.  Every picture has a story, something that ran like an undercurrent beneath the surface while I hunched to snap the photo.  I wouldn't be me if I didn't tell it.


I do have a few prayer requests for the week, if you have time to add us to your list:

  • Patience with my kids as my head hurts and my work demands my attention this week
  • Healing for my brain and Amelia's
  • Passing my comprehensive exam (written by tonight & orals on Friday)
  • Rest times throughout the week
  • Witnessing to a dear friend
  • Faithfulness in our endeavors outside of school
  • A job that is suitable for both my professional needs & our family needs

The weekly report



We spent the day today alone as a family.  My glasses came in yesterday, so I am able to drive, and I was just about giddy with the freedom of that when we drove out of the driveway this morning!  Amelia has had some difficulty with seizures in the last few days, so we headed to the pool.


Music and water...the only two things that pull her out of the deep, long partial seizures.  A day in June was happily spent with my good friend Natasha, who gave us an impromptu private session of her wonderful music and motion class.  Her kids tagged along, and Amy had fun initiating a game of "chase" with Max during the banner-waving segment.  Today, we headed to the pool instead.


God went before us, as usual, and we arrived to discover that it was a party day at the pool, complete with Rock 'n' Roll to Go sound system and dance music piped over the water!  What could be more perfect than music AND water for sweet Amy.  She has been "stuck" in a partial for about a day now, and had a very large full-blown seizure on Wednesday night that was anxiety-producing for me.  We were sleeping together during the overnight we spent at Ben and Megan's home in Lacrosse between appointments at Mayo.  Amy woke me up with her twitching, and the seizure lasted at least 7 minutes from the time I woke up (probably a bit more).  I didn't even think to give her the Diastat because I was so busy keeping her airway open and trying to avoid carpet with the two times she vomited during the seizure (I failed at the carpet avoidance but did manage to keep her breathing, thank the Lord!).


It has been trying.  As I went through photos from the past two weeks, and the serenity of this photo that Aaron snapped through our Holga lens was a reprieve from the mental anguish of the past several days.  I stared at it as I prayed this morning, thanking God that the moments of chaos are interspersed so faithfully with moments of peace, humor, and happiness.  As a Facebook friend of mine said yesterday, "God is good. That is all."


A doctor today saw Amy, heard our family story from the past year, and winced.  She commented on how unlucky Amy seems to be.  I jumped in quickly, and told her that my perspective is so different...to me, Amy is one of the "luckiest" (most blessed) girls I know.  She was saved from something that could have easily killed her...and saved almost wholly intact.  What a blessing!  It is so easy, on the difficult days when pain piles on with seizures, to view our life as a glass half empty.  In reality, our cup runneth over.  What I deserve is death...what we all deserve is death (Romans 6:21-23).  For in Him we live and move and exist (Acts 17:28).  Not only has He delivered Amelia from the punishment for her little sins, He spared her very existence on this earth.  For that I praise Him, especially in moments like these - when I see clearly, as she seizes, how different the outcome might have been.


On a side note, I wanted to pass on the great news that the glasses I got completely relieve the double vision! My headaches continue to persist, and they are awful, squint-your-eyes-shut, find a dark room to hole up in type of headaches.  I am going to try out a migraine medication to see if that helps more than the painkillers that simply dull the pain a bit and make it tolerable.  I see a neurologist about them - and the seizure I experienced in the ER right after my encounter with the toilet - next week.  I also see a speech therapist to address ongoing problems with language.  Typing this blog, for instance, has become quite tedious, as I must return to everything and proofread myself.  My brain continues to substitute similar or rhyming words for the word I intend to type, rendering mechanical spell-check tools useless.  I am praying that issue subsides quickly, as I hope to be writing my dissertation proposal in a week or so.  I would appreciate more prayers on that front, for continued healing of this brain of mine.

Pretty in pink



As far as I know, there haven't been twins in our family for a very long time.  My brother and sister-in-law have struggled with infertility, and were blessed with news of twins quite out of the blue.  Right about the time they had made an appointment, after much trepidation, with a fertility specialist.  We had a wonderful day Saturday showering Jamie with gifts and well wishes as she enters the final, most difficult part of her pregnancy.


My mom, the consummate hostess, put together a stunning Heritage Menu that reflected all the ancestral ties these two little baby girls will share: French, German, English, Swedish, Danish, Norwegian, Native American, Irish.  The most delicious had to be the homemade Devonshire cream, with it's nutty aroma and cool creaminess.  Melissa, just a few weeks from delivering her son Robbie, aided in the preparations.











It seems rather ironic that my brother Scott - the macho, police officer, hunter, snowmobiler among my brothers - is preparing for two little pink-clad girls.  I simply cannot wait to see how it changes him and brings out the hidden strengths that have lain dormant for years.  He is going to be a great dad.




Please make room on your prayer list for Scott and Jamie, and especially their sweet twins, Kaitlyn Lee and Jessica Jean.  They aren't "due" until October, but will likely be induced sometime in late August or early September because they share a placenta and amniotic sac, putting them at higher risk for late-pregnancy complications.