An inconvenient truth
I stood, hands on hips, questioning God's timing. The dryer, obviously a free gift to us, going kapoot over the holidays?? With everything else I have going on? Why does God pick the times He picks? Sometimes I am frustrated, bewildered - even angered - by His timing! Worse, we were out of money due to my extravagant desire to give generously on Christmas...no money left to replace the now defunct behemoth in my closet.
A call from Aaron: a $50 dryer on the classifieds at work. Skeptic that I am, I wearily pondered the probabilities of such a dryer functioning any better than the one I currently owned. I traded cars with Aaron in a parking lot in a blizzard: four car seats out, four car seats in. Drove what we affectionately call "the sardine can" (a.k.a. 1984 Honda Accord) home on icy roads with four kids exuberant over unexpected adventure.
The dryer arrived home. My hopes rose a bit - it was the same year and model as my extravagant front loading washing machine! Would it work? An hour of dragging the ghetto behemoth out of the closet, and averting various electrical wiring snaffus, and my husband turned the dial: it worked! It spun beautifully, warmed immediately, and was about as loud as snow blowing in the wind!
God is faithful to turn mourning into rejoicing, trial to blessing, teaching us quietly and determinedly through all the little bumps and bruises along the way. Would I have picked Christmas to learn of possible cancer metastasis? Absolutely not. Would I have chosen this week for my dryer to breathe it's last (hot) breath? No. But God did, and He is showing us, bit by bit and moment upon moment, why. In the case of the dryer, it may be because at that particular moment, a women we don't know decided to sell hers for a very low price - giving us a matched set. In the case of cancer - who knows? I may wait until I meet Him face to face in eternity to discover the answer. But I rest on the truth that inconvenience is more than it seems, that He is faithful, just and merciful. I close my human eyes to human perspective, and watch the glories of my Father dance on the screen of my closed lids.
New parallels
::
Mary, so many Christmas mornings past, Jesus lying before her, young, ripe, beautiful...mortal. The fragrance of burial spices hovering over the toddler, born to die. Handing over mortality and receiving back Divine Son for thirty years of a million sensory pleasures. Mothering Him. Holy child, suffering woman. Pushing back destiny for present joy.
Grandmother savors Christmas moments, revels in joy on the Eve of the Savior's birth. Gives over daughter with heartbreak and lament, tears herself away to praise God in new ways. Lingers in the explosion of exuberance over tiny momentary blessings. Turns willfully away from a soul of suffering to a spirit of thanksgiving.
::
Another Mary archetype. Given a child to enjoy, then given an expiration date. Nay, not even a date...just a warning. Born to die. Mary packs the myrrh away, and teaches her child to walk. Enjoys the deepening of His voice as He transforms from boy to man. Tends His wounds from thorns and the bite of the whip. Walks in agony up the rocks of Calvary, anguish and praise coexistent.
Wind-swept field, viewed from my kitchen window, snow blown like waves in the sunshine, frozen in time. My heart feels crystalline, bare, polished, exposed, like the field.
::
Christ-ones the world over, century upon century, realizing the breadth of their sacrifice. Swept bare by evil, death, suffering. Glittering in the icy sunlight. Beauty in bareness.
Fruit standing on the dry vine in a winter field, waiting for spring. Soldiers guarding precious stores, waving stiff in the December wind. Stiff like my mind as it unwraps from longed for vision of the future, and reshapes to a new reality.
::
my Bible, dead and alive at once, Word of God standing like a dry, seed-covered stalk, waiting for a breath of warmth in my soul.
Father's hand extended, toddler gripping index finger. Her tiny fingernails are white as she holds on tight, walking a new balance beam with which her chubby feet are unfamiliar. Father slows his step to match hers and never lets go. She looks down at the oak of the beam, concentrating on every step. He looks ahead, keeping track of her progress.
::
A new beam is underfoot: I think there might be splinters, pain; that it might end before I get a chance to perfect my skill; that I might fall off the side, unsure of my footing. Eyes squeezed shut, I raise a hand tentatively for my Father. Know He sees the end of the beam. I keep looking down, putting one foot after another.
Final pathology report
I thought images might help you understand what's going on with my cancer. Sometimes it helps to have a visual so that the implications of these nuances of diagnosis can be better understood.
This is what normal thyroid tissue looks like under a microscope. Notice how organized and well defined the little capsules of thyroid tissue are:
Now here is what papillary carcinoma, follicular variant looks like under the microscope. Notice how poor the organization is. The cells all look a little different and they interact differently. They don't have much "respect" for the cell next to them.
This is what "capsular invasion" looks like under a microscope. The tumor is on the right, and you can plainly see how a "mushroom" of cancerous cells has broken through the membrane surrounding the tumor and is starting to compress the normal tissue along the left side of the image.
This is what it looks like when a tumor invades the bloodstream. Notice the round follicles of cancerous tissue in the white space of the blood vessel:
Today I am thanking the Lord that I do not have the much more dangerous medullary or anaplastic types of thyroid cancer. I am praying the pathologist is wrong and there has been no vascular invasion. Today is my "cancer day" of the week. In order to preserve my hope and faith, I set aside one day a week to deal with cancer: make appointments, talk to doctors, do research online and review and organize information for upcoming visits. I can't stand to do it piece-meal, with a little bit every day. It is better to let it completely fill one day, and save the others for more enjoyable pursuits. So today I read, learn, talk about cancer; today I am a cancer patient. So that tomorrow I can be a mom, wife, daughter, friend again! With joy.
Hiding in the numbers
The tumor marker test looks for cancerous genetic material in my blood stream. The bad news is that only tumors that have access to blood supply can be tested for in this way. Recurrent tumor markers are associated with malignant metastasis (dangerous spread) in over 90% of patients with papillary carcinoma. A positive value for this test indicates aggressive disease rather than the slow-growing cancer that I have been told to expect.
The thyroglobulin test is less clear-cut. It could indicate that the remaining thyroid remnant in my throat was functioning somewhat. However, in combination with the tumor marker test, it can be used to indicate recurrent or metastatic disease. But this test is generally less compelling than the last test.
If you've been reading here for any length of time, you know I normally don't coldly report on lab tests and statistical risk. Today I hide in the numbers. My family is circled close in a spiritual and emotional sense; circling our wagons. Consternation, fear, sorrow, remorse. Emotions are running high. I will write more when I have the heart to.
Details
Tonight I am resting in the bone-weary pre-Christmas state following a long day of bustle. Baking, cooking, wrapping, making gifts, cleaning, and packing for several holiday car trips with four kids has filled my plate already, even without these latest events! I am headed to bed - shortly before 1 a.m., which is record time for the week before Christmas!
Praise:
- Aaron got Christmas Eve off unexpectedly!
- I get to play in the church band for the Christmas Eve service tomorrow - and I can SING! God gave me my voice back, and I am excited to use it!
- Healthy, happy children
- White blanket of fresh snow for Christmas
- Family, friends, food, beer, wine, presents, laughter...
- Spirits peaceful, resting on God during this time when worry creeps in (especially for Aaron and I and my parents and other family members)
- Our neighbors who lost their daughter today, the day before Christmas Eve
- My children, that this worry over cancer wouldn't touch them too deeply this Christmas season
"Be careful what you wish for"
Your beloved needs You now
God, be near, calm my fear
And take my doubt
Your kindness is what pulls me up
Your love is all that draws me in
I will lift my eyes to the Maker
Of the mountains I can’t climb
I will lift my eyes to the Calmer
Of the oceans raging wild
I will lift my eyes to the Healer
Of the hurt I hold inside
I will lift my eyes, lift my eyes to You
~ I Will Lift My Eyes, Bebo Norman
I received news today that my prayer has been answered. In a difficult way. Samples of my tumor were sent three weeks ago to Pennsylvania, and a report and interpretation of the findings from both the pathologist and the specialist at the University of Chicago were sent to my doctors. The pathologist asked for the entire tumor to be shipped to her for further testing. She has since sent a final report to my team of doctors in Eau Claire and Chicago. However, the endocrine specialist was out of the office today for the holiday, and my regular general practice doctor didn't feel capable of giving me the results himself. It is difficult to know what to make of the entire situation, other than to lean on the fact that I asked God to stay the news, and He has.
In the midst of my heart breaking and my insides turning wrong side out, my brain is trying to make sense of this. I am trying to strike a balance between responding to the news I've been given without overreacting and assuming the worst, which is my natural bent.
Mostly, I feel completely inadequate to express any of the rawness I feel right now. I am in one of those "beyond words" moments, of which I have had so many...positive and negative...in the last six months. I feel bruised and I will try my darnedest to love and savor this Christmas with my family.
Whatever God has for me in this life, I know that through the miraculous birth of my Savior over 2,000 years ago, my tears will be wiped away. I may be in the tragic, perilous, fragmented and uncertain middle ground of my fairy tale, but I will live "happily ever after" someday.
Man is a mere phantom as he goes to and fro: He bustles about, but only in vain; he heaps up wealth, not knowing who will get it. But now, Lord, what do I look for? My hope is in you. Save me from all my transgressions; do not make me the scorn of fools. Hear my prayer, O Lord, listen to my cry for help; be not deaf to my weeping. For I dwell with you as an alien, a stranger, as all my fathers were. from Psalm 39
Sliding
closed eyes
hands white with cold
gripped tight
Silence but for wind
Unleashed from gravity's pull
afloat
a tide of white
cheeks burn
ice in eyelashes
Red sleds, snowsuits, wind whipped and giddy
Back then
Now loose again
winter
brings different slopes
Ebb & flow
I have received a lot of extra hugs, phone calls and e-mails of love and reassurance since my last post. This community of friends and family God has placed me in amazes me continually as I walk this path. At every turn, I am greeted by a friend offering something that blesses me and heals me in a special way. All of you are such an important part of living - that glorious experience, a free gift to each of us, infinitely sacred and beautiful. I think of the things that are beautiful: oil paintings, photographs, quilts, old hand-hewn furniture and tools, antique machines of all kinds, certain colors, textures, plants, sounds, and smells. All these are just snapshots of a beautiful, panoramic, constantly changing landscape of life. It is the complicated and beautiful nature of my life that makes it so difficult to give up as it is today. It is like taking my most treasured possession...that thing that I value and guard and keep in a secret place...and handing it over, palms up, eyes closed, not wanting to see the moment in which it could be taken from me. Putting on vulnerability as a garment, with humbleness and faith and dignity.
It comes and goes, this grief over loss. It is not constant, but washes in and out in waves, with lulls in between that are so peaceful. It feels natural, organic. Merciful. Quiet.
Peering in on cancer
Yesterday my tumor was mailed from Mayo in Rochester to the University of Pennsylvania. My mortality on dry ice. Questions frozen for another expert look. I joined hands with the women of history: Samuel's mother savoring the babe at her breast before handing him over to become a prophet; Rahab, waiting for deliverance in a tall room along the wall of the city; Mary, breathing in the embalming spices left by the Magi as she tends her toddler son, the Savior. Staving off death in living life. Breathing in it's fragrance in every ordinary moment, comingled with all the smells of the day.
Today I kissed my husband with new longing. I disciplined my son with new urgency. I planned for the future with my daughters. I came to the brink of fear in the most average moment - throwing a ball, surrounded by Midwesterners at a holiday bowling league pot-luck. Suddenly I was suspended in the icy tide of fear, the salt of tears stinging the cracked corner of my lip as I pulled my soul back in and bit down hard on the reality in front of me, hauling back the transparent sigh of my heart about to escape, awful, loud, awkward.
Cancer is the house; I am on the doorstep. I've looked in all the windows and I've learned a lot about this house: I know many of it's textures, and smells, and what type of person lives there. But it isn't something I own yet. I linger on the threshold and inspect. I don't know if I will live with cancer for a month or ten years...if this will be but a hostel in which I camp for a night, or if I will be in cancer's rooms, waiting for test results once again a decade from now.
Please pray with me that I don't have to cross that threshold on Christmas. I am praying that the results of the latest tests on my tumor are either positive, or stayed by divine grace until after the celebration of new life. That this Christmas is a beautiful, momentous, memory-filled time of rest with my family.
This song resonates with me...it always has. It is speaking - watering - my soul today.
How deep the Father's love for us,
How vast beyond all measure
That He should give His only Son
To make a wretch His treasure
It was my sin that held Him there
Until it was accomplished
His dying breath has brought me life
I know that it is finished
I will not boast in anything
No gifts, no power, no wisdom
But I will boast in Jesus Christ
His death and resurrection
~ How Deep the Father's Love for Us, Stuart Townsend
Christmas sweets
The past week can only be described as sweet. It has been that sweetness, like a honeycomb, that has tooth to it. Substantial sweetness, not the kind that melts in your mouth, but the type that takes a little effort to enjoy. Christmas looms like a hovering glow, our house is a busy hive of wool scraps, and sweet smells, paint-spattered children, burnt oak shavings fresh off the circular saw, the sharp percussion of stamping metal and packages arriving on the doorstep daily. The calendar is full, and the house is in continual disarray, with a weeks worth of laundry always in queue for the washer.
I am finding truth in the saying, "You never know what you have until it is taken away". I am praising God that, thus far, it was a temporary pause. I am still here. I am back home to enjoy, with new fullness, all that God has given me. February is looming large on the horizon. My slides were sent today to the eminent pathologist at the University of Pennsylvania for a second opinion. Cancer - nay, mortality - is always in the background. How thankful I am for a foreground of Christmas cheer to distract me from it!
Lost in the details
Walmart on a Saturday just prior to Christmas: kids walked single file (mom silently rejoiced, "We survived!").
Hanging Christmas lights using dinky plastic hooks: kids played in snow, husband frustrated (wife wondering, "Why did I suggest this?").
We came in covered with snow, bedraggled and tired from the fresh air and a day too full. The toddler began screaming because her socks were on crooked. I lost my temper, and spat out a warning to stop fussing through gritted teeth, the whites of my eyes showing. She banged her little body down on the couch, intimidated and angered. I retreated to my room, the howls of three children echoing behind me.
The black arms of the trees against the winter sky whisper reproach. I approach the Throne tentatively. I hear the toddler stop crying, and come wandering through the house, quietly saying, "I done fussin', Mama". My heart melts. I open the door.
After I beg forgiveness, we lay on the bed, cuddled up, looking at the trees. We talk about the nativity we just put up, about Jesus, dying on the cross to forgive us as Amelia just forgave me. She giggles, then says, "I have buggers, Mama". I try to continue the lesson, buggers notwithstanding...to no avail. Every little lesson I sally forth is met with, "I have buggers, Mama". And I think, this is me! This is what I approach my Father with. He offers forgiveness, and I am more concerned about my buggers! I am the toddler tentatively walking through the halls of heaven, saying, "I done fussin', Papa."
I better grow up soon!
The everbearing fruit tree
Let him who walks in darkness and has no light trust in the name of the Lord and rely on his God.
Behold, all you who kindle a fire, who equip yourselves with burning torches!
Walk by the light of your fire, and by the torches that you have kindled!
This you have from my hand: you shall lie down in torment.
~ Isaiah 50:10-11 ESV
Here I am: Eve. Standing at the foot of the Tree of the Knowledge of Good & Evil. Reaching up for the fruit, believing open eyes are better than faith, knowledge is better than trust, power is better than rest. The age-old struggle that began when the world was barely turning on it's axis; the temptation that speaks deep in the heart of every woman, everywhere. For me, it is cancer that draws me closer to the tree, my hand stretched forth to pick the fruit. Like a moth to a flame, I run from the unknown into the closely clinging bony grip of Death, knowledge, power.
Ask any cancer patient which stage they would prefer to be in: the angst of not knowing, in those early stages of discovery, with no statistics to lean on and no answers to quote in the long, dark hours of the questioning night? I am in that place, standing next to my cancer in the midnight blackness of the diagnostic wait; nothing hurts, nothing is broken, and without the magic scalpel of medical imaging - body scans and ultrasounds - my cancer would still be nebulous and stealthy. I long to be in a place of knowledge, the treatment stage when people rush to cure and cut and clean up the mess of mortality that grows like an ink stain on linen, cancer spreading ugly fingers of stain into the snow white body of youth and health.
That is what I - as patient with cancer - long for. Yet I - the oncology nurse - know this is a foolish quest. I have seen the patients dragged down and sodden on their beds, racked by the treatment, the curing, the cutting, the cleaning up. I have seen their eyes call out from dark sockets for relief. I have held them, and caressed them, and mourned for their many small losses - hair, and strength, and the ability to eat or drink or speak or laugh. Why would I, knowing this, ask to be transported to that stage? Have I so quickly forgotten what it means to leave this blissful state of not knowing to be brought out into the stark, sterile light of a surgical suite, answers in hand and self torn away piece by piece? Better to close my eyes and walk in darkness, holding the steadfast hand of my Savior, then to beg for knowledge, light the torches handed to me by human hands and walk forth into the bitter truths armed only with mortal knowledge and power.
I can taste the fruit of Eve
I'm aware of sickness, death and disease
The results of our choices are vast
Eve was the first but she wasn't the last
And if I were honest with myself
Had I been standing at that tree
My mouth and my hands would
be covered with fruit
Things I shouldn't know and
things I shouldn't see
Remind me of this with every decision
Generations will reap what I sow
I can pass on a curse or a blessing
To those I will never know
~ Generations, Sara Groves
New reality
~ Victor Hugo
Tonight my body is worn from a day spent catching up on a million things that had been laid aside for cancer treatment. My heart feels worn, too, the jagged edge of fear wearing away at the veneer of Christmas spirit I've thrown over my eyes. As though the dam might break if someone saw too clearly what lies beneath the surface. Waiting is so hard. In Deep Survival, I read that survivors are those who adapt to changes in reality: absorb new truth, and act on it, rather than the old truth with which they are more familiar. I struggle to integrate this new truth, cancer, with all my old truths, mother, wife, student, daughter, friend. I have made many decisions in life based on a simple algorithm: if I gain more information about this, will if affect my ultimate decision? I can't seem to fit that with my current circumstances. If I learn that I have more cancer, or less, than currently believed, will it change my ultimate decision? Of only one thing I am certain, and on this rock will I rest my weary head tonight: knowing more or less about my cancer will not change where I am going when I die.
In bitterness of soul Hannah wept much and prayed to the LORD. And she made a vow, saying, "O LORD Almighty, if you will only look upon your servant's misery and remember me, and not forget your servant but give her a son, then I will give him to the LORD for all the days of his life, and no razor will ever be used on his head." As she kept on praying to the LORD, Eli observed her mouth. Hannah was praying in her heart, and her lips were moving but her voice was not heard. Eli thought she was drunk and said to her, "How long will you keep on getting drunk? Get rid of your wine." "Not so, my lord," Hannah replied, "I am a woman who is deeply troubled. I have not been drinking wine or beer; I was pouring out my soul to the LORD. Do not take your servant for a wicked woman; I have been praying here out of my great anguish and grief." Eli answered, "Go in peace, and may the God of Israel grant you what you have asked of him." She said, "May your servant find favor in your eyes." Then she went her way and ate something, and her face was no longer downcast. ~ I Samuel 1:10-18
So much to learn from such a small passage: I can pray out of great anguish and grief; I can expect to feel those things in this life. I will be deeply troubled. I will pour my soul out to the Lord. And then I should go away, go back about my business, and my face should no longer be downcast. I pray the clouds in my spirit lift tomorrow.
Piety in poop
Scene: busy Green Mill restaurant housed in small, historic St. Paul building.
Setting: bustling Sunday evening dinner crowd, mostly middle-upper class & middle aged.
Enter: busy family of 6 after long day in car. Toddler crying from upset stomach; infant teething; older children with proverbial "ants in their pants".
Synopsis: Crisis occurs half way through dinner, after two {harried} parents have spent 45 minutes distracting older children, singing inane nursery rhymes to toddler, and playing clapping games with infant. Father smells poop and immediately suspects infant. Notifies mother of his intent to go change infant in men's room. Mother [looking horrified] states that it may be better for her to change infant in women's room (as they are normally more well equipped for such things - not to mention more recently scrubbed!). Father begins rifling through overstuffed diaper bag for necessary equipment. Toddler stands up in highchair [looking horrified]. Father immediately motions frantically to mother to detain toddler. Mother misunderstands and tries to get toddler to sit back down. After brief, under-his-breath exchange with mother, father makes his point clear: toddler is covered - yes, covered! - in poop. Snowy white dress-up sweater, floral cordoroys and peach t-shirt - even socks. Mother scoops up toddler, trying to cover up poopy details with aforementioned white sweater so other patrons will not guess the purpose behind her sudden, high-speed flight to women's restroom with small child in tow. Upon realizing wet wipes are missing from aforementioned overstuffed diaper bag, mother spends 20 minutes extracting 6" segments of scratchy paper towels from the automated dispenser, while toddler attempts to smear poop all over restroom walls. After placing toddler in 5-point stance against stall wall, mother wets towels and begins her layer-at-a-time extraction of the toddler from poop-smeared garments. Briefly considers using abandoned snowy white fleece winter scarf that someone has left in the restroom as a make-do baby butt wipe [this was the low point] when toddler screams from scratched bottom. Thanks heaven and all that dwell in it that she remembered extra toddler outfit, and emerges from restroom with not a hair out of place and clean [moderately] toddler in tow. None of the patrons seem disturbed, nor has it apparently occurred to any of them to wonder why toddler took 20 minutes in restroom and emerged in new outfit.
This, my friends, is being saved through childbearing. For what other human would I drop my appealing dinner and run high-tail to the restroom to spend 20 minutes scrubbing dried on poop off of body and clothes, while placating, soothing, and singing to said poopy individual? God is teaching me piety in poop, serenity through sacrifice, love in laughter, joy on my knees in a cold, cramped bathroom as I laugh over the thought of using someone else's scarf on my child's poo-burnt bottom!
Lament & proclaim
A phone conversation with a friend reminded me today that some separations are worse than those in my life of late. Imagine being ideologically opposed to your dearest loved one, with hardly a hope for reconciliation and an eternal future of being torn apart. While I was in physical isolation from my family, we shared so much using other forms of communication. The cry of my heart was tempered, the long low, plaintive wail of a lone violin crying out in solo for a moment before being rejoined by the symphony. But those who are eternally destined for a different home than those they love...their soul doesn't cry or weep, but is rent in two, the relentless crescendo of a hurricane beating in on a lonely, evacuated shore of endless sorrow. My grief was a season and theirs a lifetime.
Imagine yourself standing in a boat on the Bering Sea. Your comrade is struggling in the surf, tossed overboard by a rogue wave of ice and sleet. At your feet is rope that has been blackened by the salt water, the ragged fray of the coil in your hand biting into your grip. You don't know where the rope ends, and whether or not it is actually anchored to anything on board. Would you hesitate to throw the lifeline to your friend, unsure whether it will hold his weight, or whether it will be long enough to reach him? Can you imagine his consternation if he were to watch you, contemplating all the unknowns about the rope you hold, while he sinks for the second and third time, struggling against the tide, his heavy gear inexorably pulling him under?
Christ is the rope. Many of my friends and loved ones are the drowning man. When I proclaim Christ to them, I do it completely and wholeheartedly out of love. Because I am on the ship forever, and will be willing, until I die, to toss the rope of salvation to anyone drowning who will reach their hand out to grasp it. During this season, it is foremost on my mind daily. Our culture has sold the idea that Christmas is a season of benign good cheer, and incessantly batters us with images of handshakes, group hugs, smiles, and comfort food...or worse, materialistic shopping, giving and gleeful shrieks over presents...neglecting the undeniable Christian Christmas imagery. Christmas is, after all, about Christ - and while modern Christianity has bought into the idea of inclusion, touting Christian love as mutually exclusive to Christian witness, Christianity is also a divisive and exclusive faith. I hear this in Christ's own words, He who is not with me is against me, and he who does not gather with me, scatters. (Luke 11:23)
Speak Christ in love to those who listen...and perhaps those who will not...this Christmas. Pray, earnestly, for the salvation of lost souls. Let your heart swell with the hurricane of loss and love felt by those closest to them, let the waves of pain beat the shore as you beg for grace and a beseeching call to be spoken in their own heart this Christmas season.
Nails, spear shall pierce Him through,
The cross be borne for me, for you.
Hail, hail the Word made flesh,
The Babe, the Son of Mary.
This, this is Christ the King,
Whom shepherds guard and Angels sing;
Haste, haste, to bring Him laud,
The Babe, the Son of Mary.
~ What Child is This
The cost of survival
So what, exactly, are we "surviving" for? An easier future? A healthy future? A future of happiness, surrounded by things and people you love? A future of material wealth? A future of renown or professional applaud? A future of contribution to the human race? A future of solitude, peace, spa moments, vacations, or enjoyment of nature? A future of substantial charitable contributions? Political success? Financial freedom? Debt-free living?
I want to fix my eyes on the goals of Scripture. I want to survive to pour myself out like a drink offering. I want to survive to fight. I want to survive to firmly hold my faith. I want to survive to yearn for and welcome His coming. I want to survive to endure more strict training. I want to survive to buffet and subdue my body and my mind. (I Corinthians 9 & II Timothy 4)
Well I've got God on my side
And I'm just trying to survive
What if what you do to survive
Kills the things you love
Fear's a dangerous thing
It can turn your heart black you can trust
It'll take your God filled soul
Fill it with devils and dust
~ Devils & Dust, Bruce Springsteen
Survival doesn't always even mean survival. If I fight only to survive, how will I feel in 10 years when I am diagnosed with a secondary cancer due to my radiation treatment? Like I've been cheated? I want to feel nothing but thankfulness and relief over the way I've run my race. Please pray for this little girl, who survived her first round and is now battling her way through a second.
Beautiful bruises
...broken...
...created by God to love, learn and leave the crucible that is life on earth.
Every day is a bittersweet cup of sorrow and sweetness that we alone are beckoned to drink. No one can drink in our day for us. No one can do my work. No one else can feel my pain, nor my joy. It is the gift of each day from an infinitely loving and merciful Savior who has intimately planned each detail of each moment for my pleasure, growth, experience. I may not understand the intricacies. I may not appreciate bearing my crosses. I may at times rail at the work at hand. And yet, at the close of each day, in the peace of the late, coal black night hours, I see the stars glistening down on me as I stand on the land God gave me with the legs He gave me, and the crushing magnitude of His blessings crash over me in white, anguishing, turbulent surf. I am His and this is all for Him. How little my sufferings of today are compared to His bearing of my sin on the cross!
To the cross I look, to the cross I cling
Of its suffering I do drink
Of its work I do sing
For on it my Savior both bruised and crushed
Showed that God is love
And God is just
At the cross You beckon me
You draw me gently to my knees, and I am
Lost for words, so lost in love,
I’m sweetly broken, wholly surrendered
What a priceless gift, undeserved life
Have I been given
Through Christ crucified
You’ve called me out of death
You’ve called me into life
And I was under Your wrath
Now through the cross I’m reconciled
~ Sweetly Broken, Jeremy Riddle
Mirrors
or easy, this clarity
With which I give you yourself.
Consider what restraint it
Takes: breath withheld, no anger
Or joy disturbing the surface.
Of the ice.
You are suspended in me
Beautiful and frozen, I
Preserve you, in me you are safe.
~Mirrors III, Margaret Atwood
I suppose it is a shock to every cancer patient when their physical appearance begins to change because of their treatment. I naively assumed that, because of the specificity of my treatment, I would have no long-term appearance changes. I am grateful I am not losing my hair - although I have always wanted to try out the Sinead O'Connor look! - but the other changes are annoying, regardless. I knew, objectively, that going off thyroid replacement and taking radiation to kill off the remainder of my functioning thyroid would rapidly speed the aging process. But it is rather a shock to go to bed 29 years old and wake up much older! My hair is coming in white, at least in one area of my head. I may end up with a completely white head of hair at the end of this! Wouldn't that be something [insert look of horror here]. I also patted my own back for my victory over the weight gain that I was told would be part and parcel of this process - I gained not one pound while my metabolism shut down, which is a testament to the power of the "growling belly system" for weight control. However, my body shape has changed, which is really disappointing to me.
In the midst of this sudden aging, I lean on the unconditional love expressed by my husband and children. It is amazing to me to look into Aaron's eyes and realize there is genuine love there for me, undeserved, treasured. To laugh with my son and realize he cares not a wit about what I look like, only that I am present and that I love him. I know that God, certainly, cares for me regardless of how my appearance changes. Yet I also cannot dispute that He cares immensely about how things look. I sit in my kitchen writing this, and a cascade of swirling snowflakes is falling between the rising morning sun and I. Even from my window, I can see the tiny crystal structure of the flakes catching the sunlight like tiny pieces of frosted glass. The sun is a pale yellow this morning, uncertain yet if it is flavescent or albicant. The cottonwood tree waves her bare branches like old arms toward the cold moon setting, and the pine stands still as a sentinel in the windless dawn. The grasses on the hillside have turned rusty brown, and collect the snowflakes like so many pieces of jewelry to adorn their dry stalks. The world of my morning was so obviously made and set in motion by a God who cares about beauty. The question is: what does He find beautiful in me?
I have seen the burden God has laid on men. He has made everything beautiful in its time. He has also set eternity in the hearts of men; yet they cannot fathom what God has done from beginning to end. I know that there is nothing better for men than to be happy and do good while they live. ~ Ecclesiastes 3:10-12
Your beauty should not come from outward adornment, such as braided hair and the wearing of gold jewelry and fine clothes. Instead, it should be that of your inner self, the unfading beauty of a gentle and quiet spirit, which is of great worth in God's sight. For this is the way the holy women of the past who put their hope in God used to make themselves beautiful. They were submissive to their own husbands, like Sarah, who obeyed Abraham and called him her master. You are her daughters if you do what is right and do not give way to fear. ~ I Peter 3:3-6
So I sit, quietly, and watch the unfading and ever-changing beauty of God's creation swirl past my window. Breathing in the cold morning air and delighting in the hot cup of coffee He provided, brewed by the patient, loving hands of my husband. Delight in being home, this beloved yellow house filled with all it's beloved noises and seasons. Enjoy the holidays. I've heard that phrase a million times, and I finally understand what it means. It means savoring, absorbing, revelling in the little common and wonderful things, reflecting on the miracle of Christ's sacrificial birth. Putting on the unfading beauty of a gentle and quiet spirit. Stilling the waters of my soul in the beautiful dawn.
Stages
you made me trust in you even at my mother's breast.
From birth I was cast upon you;
from my mother's womb you have been my God.
Psalm 22:9-10
Beginning to take shape under a skilled hand. In the middle stages, things often look strange and unfamiliar. The Loch Ness monster looms instead of what I had created with my mind's eye. It is tempting to give up - I am certain things won't turn out well in the end. I can't imagine what good will come of persevering at this point.
for trouble is near and there is no one to help.
I am poured out like water...
My heart has turned to wax;
it has melted away within me.
My strength is dried up like a potsherd,
and my tongue sticks to the roof of my mouth;
you lay me in the dust of death.
In the end, it all comes together. What was once a pile of fuzzy, useless scraps will be cuddled and treasured in it's new form. It isn't a monster after all...it just needed a few more pieces added and a few finishing touches to bring out it's character. My perseverance paid off.
the suffering of the afflicted one;
he has not hidden his face from him
but has listened to his cry for help.
All the rich of the earth will feast and worship;
future generations will be told about the Lord.
They will proclaim his righteousness to a people yet unborn—
for he has done it.
Psalm 22:24, 30-31
My heart is steadfast oh GodAnd I will sing
With all my heart and soul
Music for the King
And I will awake the dawn
With my praise to You oh Lord
How great is Your love
So much higher than the heavens
With faithfulness that reaches the sky
~ How Great is Your Love, MercyMe
Why write?
And so I, taking up my unique cross at this tentative juncture of my life, make my thoughts, feeling, and resolute choice to follow the Father transparent. I invite the world to inspect my victories, and my shortcomings, and to see my answer to everyone who asks me to give the reason for the hope that I have (I Peter 3:15). I write partly because I do not want to disappear into the void if I die from this cancer. I want something of this struggle to remain, especially for my children. I don't want to be another tragic story, I want to be a story of victory and glory for God. I want to be sure that my children know that about me. I also write to heal, to process, to examine my heart. If I write it out, it is laid bare in a new way, before both God and man. And I pray, with David, Search me, O God, and know my heart: try me, and know my thoughts: And see if there be any wicked way in me, and lead me in the way everlasting. (Psalm 139:23-24).
After Christmas haze
I am in the after-Christmas phase of this trial. I woke up that morning of reunion with the same butterflies in my stomach I have had on Christmas Eve morning ever since I can remember. The joy of seeing my children and husband again - holding them - was better than unwrapping any gift I've ever been given. Now I am experiencing that period of being overwhelmed, feeling as though my world has been turned upside down. I feel a bit like a stranger in my own home, with routines, chores, and sleep schedules all just a little different than they were when I left. Not only that, but I feel frustrated with being overwhelmed! I wish I could say that yes, I've learned my lessons, and I value and cherish these children more than ever and delight to care for their every need. I do, in one sense, but it is still difficult. Cherishing the tasks does not make them easy. Christ warned us of this, and now I am learning it firsthand in new ways. If anyone would come after me, he must deny himself and take up his cross daily and follow me. For whoever wants to save his life will lose it, but whoever loses his life for me will save it. (Luke 9:23-24) I am taking up my cross, the heavy, rough wood of it scratching into my shoulder, making me ache by bedtime. I am taking it up daily, each morning inhaling deeply and rising to the needs of the little ones I am called to tend today. I am fixing my eyes on Christ, determinedly, in spite of the burn-out. When I am overwhelmed, I am closing my eyes in prayer for strength. I want nothing...burn-out, stress, plethora of tasks and studies, little troubles in relationship...to distract me from the work I have been assigned, and the joy I have been provided.
You're the Light in this darkness
You're the Hope to the hopeless
You're the Peace to the restless
You're the strength in our weakness
You're the love to the broken
You're the joy in the sadness
You Are
Greater things have yet to come
Great things are still to be done
In this city
Where glory shines from hearts alive
With praise for you and love for you
In this city
~ God of This City, Chris Tomlin
Climbing back in the highchair
I've read about regression after stressful life events, but I've never witnessed it so dramatically in my own children. Amelia has been climbing into the high chair and asking for a bottle or "so-yo" (cereal), stammering and making a lot of pre-verbal sounds instead of speaking to me, requesting to "lay in my arms" like a baby. Rosy is sucking her thumb, having nightmares, wetting the bed, cuddling much more than usual. Caleb is continuing to try and nurse on me, although it has been almost 6 weeks now since I weaned him - I foolishly thought he would have forgotten by now. Katy is fussing, in ways which she hasn't for years, and asking me to cuddle her while she falls asleep.
All this reminds me that this is the state we willfully put ourselves in, as children of God, in the long periods that we separate ourselves from Him by stubbornly choosing freedom of flesh over freedom in Christ. I am the regressed child, long stumbling through the desert of loneliness, huddling now in my Savior's arms. I am the newborn babe crying for milk, I am the toddler stumbling over words, I am the preschooler terrorized in the night, I am the child fussing for attention.
What amazes me about this analogy is the love Christ has welling over for me, the prodigal returned! As the mother of Caleb, Amy, Rosy, Katy, I delight to meet every need in these days of renewed exuberance over our relationship. I am so thrilled that they need me, that they recognize their need for me and beg for me, it matters little whether or not they are maturing, whether they are living at the potential I have seen in days past. What matters is that we are back together. My heart is filled with boundless joy because I have the chance to serve them again. I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge. (Ephesians 3:17-19) Parenthood has been a season of learning what it means to love unconditionally. I am learning daily, as I tend to my children, what it means to love someone, regardless of how they smell, look, feel, act, or what little they are doing for me. It is an exercise in being selfless, and I am blessed that God has given me this opportunity to glimpse the sufferings of Christ. And the beauty of the homecoming of His beloved children in His eyes. Even if we are serving Him daily, there is daily at least those momentary lapses that require repentance and restoration to fellowship. If we are not serving Him daily, there is an exuberant, desirous Father waiting at the threshold of our hearts, just begging to be ushered in for a joyful reunion like the one I am experiencing with my children! Yes, we will regress. And yes, our Father loves us in spite of, perhaps even because of, our little human weaknesses. For isn't it the very childish mispronunciations, and lisps, and regressions, that most endear our children to our tender hearts?
Infinitely beyond
Now to Him Who, by the action of His power that is at work within us, is able to carry out His purpose and do superabundantly, far over and above all that we dare ask or think, infinitely beyond our highest prayers, desires, thoughts, hopes, or dreams--To Him be glory in the church and in Christ Jesus throughout all generations forever and ever. ~ Ephesians 3:19-21 (Amplified)
Today is an Amplified version sort of day. Without the blackness of the past 17 days, the pure white joy of the past 24 hours would be so much less. God is so wise and gentle in His love for me. I am blissfully finishing feeding my children their 5th meal/snack of the day! Right now they are feasting on plain whole wheat bread (untoasted, with the crusts torn off) with honey, a favorite of theirs. My skinny little Rosy is on her 5th piece! Because the emotions of these past 24 hours completely surpass my powers of description, two more short video clips...
Notes in the margins
In the margin: How is it possible to have so much wrath and yet so much promise, the coexistence of hope and commitment with annihilating judgement? This is the inconceivable divine...
My hope lies not in governments, principalities, physical realities, proximity to those I love, temporal comforts, freedoms, Constitutions, even God-given relationships. It rests solely in Him and the promise that the next world is to be my focus and my aim, the source of my joy and my salvation. I fear what God is doing in this country; I fear - in that awe-struck sense, shrinking from the unknown, shrinking from the human realities of pain and tears - what He may be doing in my own life in these next months. I don't want to see our country laid to waste; I don't want to see my bones laid bare by illness. But neither would destroy the hope that I have in Him.
"For this vision of truth God has been working for ages and ages. For this simple condition, this apex of life, upon which a man wonders like a child that he cannot make other men see as he sees, the whole labour of God's science, history, poetry - truth upon truth in lovely vision, in torturing law, never lying, never repenting; and for this will the patience of God labour while there is yet a human soul whose eyes have not been opened, whose child-heart has not yet been born in him. For this one condition of humanity, this simple beholding, has all the outthinking of God flowed in forms innumerable and changeful from the foundation of the world; and for this, too, has the divine destruction been going forth; that his life might be our life, that in us, too, might dwell that same consuming fire which is essential love."
~ George MacDonald, The Consuming Fire
Those who go before me
But is that enough? The terrible things in the world seem to make a mockery of the love of God, and the question always arises: Why?! God allows Satan to make a test case from time to time. It had to be proved to Satan, in Job's case, that there is such a thing as obedient faith which does not depend on receiving only benefits. Jesus had to show the world that He loved the Father and would, no matter what happened, do exactly what He said. The servant is not greater than his Lord. When we cry "Why, Lord?" we should ask instead, "Why not, Lord? Shall I not follow my Master in suffering as in everything else?"
Does our faith depend on having every prayer answered as we think it should be answered, or does it rest rather on the character of a sovereign Lord? We can't really tell, can we, until we're in real trouble.
...asking God to enable her to show the world what genuine faith is--the kind of faith that overcomes the world because it trusts and obeys, no matter what the circumstances. The world does not want to be told. The world must be shown. Isn't that part of the answer to the great question of why Christians suffer?
~ Elisabeth Elliot, A Path Through Suffering
Two more days until I am reunited with my family! I told Katy to put a big red "x" through today's date on the calendar so she can visualize how short a time of separation is left. Each day gets a little harder at this point. I imagine Wednesday will feel like a "party" day - I will wake up with butterflies in my stomach and spring in my step. I dreamt this morning about holding Caleb, and it felt so real that I tried to will myself to stay asleep to revel in the dream for a few moments longer.
How light and momentary my trials seem as I think about what others have gone through. A few of the stories that have been compelling me onward in courage beg sharing here. My aunt Shera has come to my mind again and again as I undergo this separation. She was divorced many years ago, and has lived a large part of her life alone, single. She is alone with God all the time, and I see the amazing peace she has, alone with Him. But her heart still cries out for companionship just as mine has done in these past two weeks. I hear the lonesome strains of the song of her soul every now and then in her letters or her words, sometimes her eyes. Yet, despite that song ever streaming from deep within, she has had to learn to dwell in God's peace, to satisfy her desires through Him, in a long-term sense. Who am I to complain during a brief separation from my husband and children?
As I woke this morning from my dream of holding my son, my heart was broken once again for the dear friends I have who have lost a child. How much more precious those visions during slumber must be to them who will not hold their dear one again in a few days time. My words are completely inadequate to express how humbled I am to watch Christ's dignity and willingness to bear a cross played out in their lives. How much deeper a well of suffering they must drink from...how much deeper that granite vein of strength born through trials runs in their hearts than mine...how much more still the waters of their souls are becoming as they learn to rest in God's presence and trust His teaching hand, however harsh it may seem to human understanding. They, truly, are overcoming the world, and show us, through their example, the wonderful, awesome and terrible faces of the mighty God we serve!
To him that overcomes the foe,
White raiment shall be giv’n.
Before the angels he shall know
His name confessed in Heav’n.
Then onward from the hill of light,
Our hearts with love aflame,
We’ll vanquish all the hosts of night,
In Jesus’ conqu’ring Name.
Faith is the victory! Faith is the victory!
O glorious victory, that overcomes the world.
~ John Henry Yates, Faith is the Victory, 1891
Heartsick
Say no to partial birth abortion
Fighting the harness
I prayed for years to be put behind a plow for God. I prayed as I wept by the bedsides of children I did not bear that He would give me children of my own so that I could walk this incredible journey I watched parents walking. It is something I literally begged God for. And He said, "Yes, my child", and gave me four children in four years! God's blessing is bountiful when He pours it out on us. In the midst of walking the path of young motherhood...truthfully, just past the threshold...I began to wonder if I had been "called" to this after all. What if it was all a mistake?? What if, instead of allowing a blessing, God had allowed one massive test to enter my life? I pictured the scene in heaven, God telling Satan, "No, don't give that woman children. She is a perfectly good nurse and that is what I have called her to do."
[Enter the pitiful wails and flailing about of my faulty human spirit and hormonal young womanhood.]
God tips His ear my way, and says, "Hmmm. Well, if she really desires it, and yes, it WOULD be a good test for her. Alright, Satan, have at it! I promised to be with her, and I will. She will cry out to me, and I will draw nigh to her. Let's give her the test she asks for."
Do you have a "blessing" in your life that feels more like a trial most of the time? Do you wonder if you misread your "call"? Do you resist the harness of the plowhorse, feeling as though perhaps you were bred for sprinting, not 12-hour days cutting the ground into furrows? Do you wonder if the grass is sweeter at the race track, or the pasture where a loving family keeps you for occasional riding use? Would you rather work in the mountains, perhaps, or see what it is like to work down in sunny
[Enter somber doctor with lab report, medical record and pathology. In short, enter cancer.]
Young woman, if it is you reading this, lay down your struggles. I beg you to lay them down sooner than I did. Don't push God's limits with your questions and your struggles and desires for self. Lay your self down willingly at His feet! Pray about it every day, as I did not. Ask your husband to help you, as I did not. Ask an older woman for counsel, as I did not. Pray some more. Why struggle to the bitter end, digging your nails into the last shreds of your dignity and selfhood as they are gently and inexorably pulled away from you? Don't you see it is YOU who are shredding it? God asks you to hand Him the garment of your old self - and promises to hand back, in return, a glorious new garment. "...put off the old self with its practices, and put on the new self, which is being renewed in knowledge after the image of its creator. Put on then, as God's chosen ones, holy and beloved, compassion, kindness, humility, meekness, and patience, bearing with one another, forgiving each other; And above all these put on love, which binds everything together in perfect harmony." (Colossians 3:5-14 exc. ESV)
Do not sell your soul for the paltry pittance your culture will offer you! My self, that intellectual bauble I too easily praise, is not worthy of a second glance when my Savior and His tasks lie before me! Instead of narrowing my depth of focus to self, wondering if I'd misinterpreted God's call and made a mistake to ask for these children, why not look up at the landscape before me and trust that this view, this vista...this is what God has planned for me. If it is before me, it is my call. My self - yes, created by Him, yes, valuable in His merciful, Fatherly eyes. But worthy of worship? Worthy of sacrifice? Do not let feminism turn your body and your mind and your contribution to society into something that it is not! You were created to praise God, not self. You were created to serve God, not self. Do not be a fool, as I have so often been in these past five years! A wise woman builds her home, but a foolish woman tears it down with her own hands. (Proverbs 14:1)
Today I am praying for lasting change. I don't want cancer to be the proverbial blip on my screen. I want it to be changing me forever. I want to trade my slow connection with God, the one that I have accessed only in times of greatest need, for high-speed, the type that is constantly exchanging information. In the world, cancer turns people inward as they focus on improving their healthy lifestyle to maximize their days on this earth. That is not my goal. I want to maximize my soul's harvest in heaven. That is my focus. I repent that I only heard this lesson through God's megaphone of cancer. I repent that I neglected the soft whispers of His loving, Father-voice in my soul while I held my delicious babies close. I repent that I was deaf to the voice of my compassionate husband, who desires the best for his family and wishes to make me a queen in my own home. I repent that I struggled so against the harness of my plow. Now that it is lifted off my shoulders, I see the deep furrows and scars in my soul where I have struggled. Where God desired serene beauty there is now a battle-worn heart. When He put peace and understanding in my reach, in plain sight, I turned away and cried bitter tears I never had to cry. I chose suffering instead of peace; flailing instead of resting; this life instead of the next. Please don't do it! Learn from my mistake.
The God who is ever uttering himself in the changeful profusion of nature; who takes infinite years to form a soul that shall understand him and be blessed; who never needs to be, and never is, in haste; who welcomes the simplest thought of truth or beauty as the return for seed he has sown upon the old fallows of eternity, who rejoices in the response of a faltering moment to the age-old cry of his wisdom in the streets; the God of music, of painting, of building, the Lord of Hosts, the God of mountains and oceans; whose laws go forth from one unseen point of wisdom, and thither return without an atom of loss; the God of history working in time unto christianity; this God is the God of little children, and he alone can be perfectly, abandonedly simple and devoted. The deepest, purest love of a woman has its well-spring in him. Our longing desires can no more exhaust the fullness of the treasures of the Godhead than our imagination can touch their measure. Of him not a thought, not a joy, not a hope of one of his creatures can pass unseen.
Life is no series of chances with a few providences sprinkled between to keep up a justly failing belief, but one providence of God; and the man shall not live long before life itself shall remind him, it may be in agony of soul, of that which he has forgotten. When he prays for comfort, the answer may come in dismay and terror and the turning aside of the Father's countenance; for love itself will, for love's sake, turn the countenance away from that which is not lovely; and he will have to read, written upon the dark wall of his imprisoned countenance, the words, awful and glorious, Our God is a consuming fire.
~ George MacDonald, The Child in the Midst